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Ruby Raising Lexi
Manage episode 444636379 series 3471806
Innehåll tillhandahållet av Deonna Wade and Rhandyl Vinyard, Deonna Wade, and Rhandyl Vinyard. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Deonna Wade and Rhandyl Vinyard, Deonna Wade, and Rhandyl Vinyard eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
In this episode we talk to Ruby about her daughter Lexi who has Arthrogryposis Multiplex Congenita (AMC), a rare condition affecting joint movement.
We talk about:
- the early days of the diagnosis and navigating early interventions,
- what her physical therapy and multiple surgeries have been like,
- her teaching her daughter how to advocate for herself,
- and the challenges and triumphs of parenting a child with AMC.
Follow @amcsupport to learn more about the disease!
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