Maria Mendoza's Story

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Manage episode 362501374 series 3276234
Innehåll tillhandahållet av Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
  • Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
  • Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
  • Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
  • Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
  • Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
  • Sickle cell disease affects individuals from various ethnicities and backgrounds.
  continue reading

19 episoder

Artwork
iconDela
 
Manage episode 362501374 series 3276234
Innehåll tillhandahållet av Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
  • Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
  • Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
  • Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
  • Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
  • Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
  • Sickle cell disease affects individuals from various ethnicities and backgrounds.
  continue reading

19 episoder

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