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I'm newly diagnosed and I'm angry, I'm frustrated, and I'm bitter.
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Today we’re talking about the frustration of a new celiac diagnoses, well meaning friends who say the wrong things and a future spouse who feels inconvenienced by his wife-to-be’s new disease. Seriously. Here is the email I received:
Thank you so much for the candid website. I am partially diagnosed, meaning my numbers were high but I have to wait four to eight weeks for the biopsy to come back, but they were high enough that the doctor said it's most likely Celiac disease. I will only receive dietician support and resources once that comes back.
This journey has been so, so frustrating. Hearing well-meaning family members tell me "it's healthier." and "You'll get super fit." and "There's plenty of GF options out there!" just adds on to the frustration.
Having a fiancé who is supportive until he HAS to cook dinner on his cooking nights, otherwise I’d have nothing to eat that's safe the next day, is disheartening. While if he doesn't cook, he can pick something up at any restaurant and eat pasta that will reheat the next day. Basically he's supportive until it's an inconvenience. I have felt incredibly alone, bitter and downright angry over this diagnosis.
Thank you SO much for this website. It's refreshing to have someone finally state how I've been feeling. Yes, it's great to have a diagnosis, but it's overwhelming. Nobody in my life understands the frustration. I have ordered your book, and will continue to find support from this website.
Tune in for my response, including some tough love.
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