In this monthly podcast, host Rosanne Corcoran interviews experts in the field, asking questions caregivers want to know the answers to – with topics ranging from the practical to the emotional strains of caregiving. Rosanne carries her experience as a former primary, in-home caregiver and Daughterhood Circle Leader into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.
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Information and education on hospice and end of life care.
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Dementia Tropes and Platitudes with Kitty Norton
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In 2016, Kitty Norton left her job as an NBC assistant editor in Los Angeles, CA for her hometown of Portland, OR to care for her mother living with dementia. While caring, she authored the dementia caregiver blog Stumped Town Dementia, writing tales of dementia life, not dementia death, which resonated deeply with readers around the world. After h…
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How to Cope With Grief During the Holidays
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As the holiday season approaches, many individuals find themselves grappling with grief and sadness rather than experiencing the traditional joy and cheer. The holidays, typically a time for family gatherings, can feel particularly heavy when a significant family member is no longer present. In this replay episode, Polly Stock, the Bereavement Coor…
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Susanne White Offers Timely, Helpful Support to Tired Caregivers
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In this episode, host Jerry Fenter interviews Susanne White, founder of Caregiver Warrior. As a family caregiver with personal experience, Susanne has created an organization dedicated to supporting the family caregiver. Tune in for invaluable insights and encouragement for caregivers everywhere! Episode Highlights: Inspiration for Caregiver Warrio…
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An Experienced Caregiver Reveals Valuable Life Lessons She Learned
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In this episode, we welcome Susanne White, who dedicated a decade to caring for her family members, including four years for both of her parents, who passed away just seven weeks apart. Susanne opens up about her transformative caregiving journey, sharing invaluable lessons learned along the way. She hopes to empower fellow caregivers, offering hop…
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Caregiver-Doctor Communication: What Matters Most with Cheryl Phillips, M.D.
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Cheryl Phillips, M.D., AGSF, is the immediate past president and CEO of the Special Needs Plan Alliance, and currently a Senior Program Consultant with the John A Hartford Foundation. She has extensive experience in health policy, Medicare Advantage and the Program of All-inclusive Care for the Elderly (PACE). As a fellowship-trained geriatrician, …
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Our Exceptional Hospice Professionals Share Their Insight and Perspective, Part 2
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In this episode, we speak with two exceptional Harbor Hospice and Beacon Hospice professionals who have been recognized for excellence in their field: Shannon Britan, RN Case Manager Erica Sanchez, RN Case Manager Our guests share their personal journeys into hospice care and offer valuable insights for those considering a career in this meaningful…
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Our Exceptional Hospice Professionals Share Their Insight and Perspective, Part 1
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In this episode, we speak with two exceptional Harbor Hospice and Beacon Hospice professionals who have been recognized for excellence in their field: Shawna Sibley, Hospice Administrator Graham Paterson, Hospice Spiritual Counselor Our guests share their personal journeys into hospice care and offer valuable insights for those considering a career…
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Supporting Your Mental Health While Caregiving with Susan Weinstein, Esq.
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Mental health is crucial for overall well-being at every stage of life. It encompasses our emotional, psychological, and social well-being, influencing our thoughts, feelings, actions, stress management, relationships, and decision-making. Supporting your mental health is especially important during caregiving. In this episode, we discuss the diffe…
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Empowering Caregivers: The Daughterhood Journey with Rosanne Corcoran
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In this episode, we welcome Rosanne Corcoran, host of Daughterhood: The Podcast for Caregivers and a recognized advocate for aging. Rosanne shares the inspiring story behind Daughterhood, a vital resource for caregivers, and discusses how her personal caregiving experience was helped by this supportive community. Rosanne brings her wealth of experi…
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The Caregiving Journey: Lessons from 12 Years With Mom
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In this episode of Lighting the Path, Rosanne Corcoran shares her transformative journey through 12 years of caregiving for her mother with dementia. Rosanne discusses the emotional and practical challenges she faced, the lessons learned, and the importance of community and support for caregivers. Listeners will gain valuable insights into navigati…
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How to Live Fully in Dementia Caregiving with Dr Sheri L Yarbrough
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When Alzheimer’s dementia arrived without warning, Dr. Sheri L. Yarbrough (Praxis Senior Care-Giving Solutions)used her ability to view a circumstance from multiple perspectives to understand what her mother was experiencing. That became the genesis for her care management strategy, the Praxis for Care. Living the Praxis for Care helped create her …
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Providing Practical Support for Caregivers When it's Needed the Most
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In this episode, we explore the vital role of caregiver support groups in helping family caregivers manage the multifaceted stresses of caring for a loved one with a life-limiting illness. Our guest, John Wayland, a spiritual counselor and facilitator for a caregiver support group at Harbor Hospice, shares his insights and experiences on the practi…
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Precious Time: A Practical Guide to Compassionate End of Life Communication
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Jennifer O'Brien, author of The Hospice Doctor's Widow, joins us to discuss her experiences and resources for caregivers and those facing end-of-life situations. Key points from the interview: - Jennifer created "Precious Time," a resource to help healthcare professionals communicate effectively about end-of-life situations. - She discusses the con…
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Mindfulness in Caregiving with Nancy Gentle Boudrie
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Today my guest is Nancy Gentle Boudrie. For 35 years, Nancy helped Business Owners and Corporations achieve peak perform and create exponential success until she found her true passion and purpose working with people to manage high levels of stress and navigate unprecedented challenges. She blends her business knowledge with her training from Jon K…
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The At Peace Toolkit is a Helpful Resource for Everyone
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Jennifer O'Brien, author of "The Hospice Doctor's Widow," returns to discuss her free "At Peace Toolkit" in this episode. This essential resource, available at hospicedrswidow.com, guides individuals through simple yet crucial steps for end-of-life planning. The At Peace Toolkit offers: - A streamlined approach to end-of-life preparations - Potenti…
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A Practical Look at Caregiving From the Hospice Doctor's Widow
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In this episode, we delve into the poignant and insightful journey chronicled in Jennifer A. O’Brien’s book, The Hospice Doctor’s Widow: A Journal. Jennifer shares her deeply personal experience of caring for her husband, Bob, a hospice and palliative care physician diagnosed with advanced metastatic cancer. This episode is a heartfelt exploration …
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Traveling with Your Care Partner with Carol Giuliani
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Traveling with your care partner can be stressful. Carol Giuliani of Senior Travel Companion Services is here to provide strategies and some little-known tips for caregivers. She has planned and executed over 125 domestic and international trips through all 50 states and across the globe. In this episode, Carol and I discuss tips for traveling with…
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Companioning: An Essential Quality for Hospice Professionals
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Rev. Dr. Rodney Bolejack emphasizes that "Companioning" is a crucial quality for hospice professionals. In this episode, he outlines the key principles necessary to be a truly supportive companion for someone nearing the end of life, highlighting that it involves more than just physical presence. Personal caregivers and hospice professionals alike …
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The Value and Power of Conferences for Hospice Professionals
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Learning and growing as a professional is important in any field, including hospice and palliative care. In this episode Rev. Dr. Rodney Bolejack shares the messages he presented to a conference of hospice chaplains for Harbor Hospice and Beacon Hospice. Rodney has been working in hospice for over 30 years and has spent many of those years teaching…
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Elizabeth Uslander, MSW, Shares the Important Concept of Transformational Grief
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Elizabeth Uslander is a medical social worker and the spiritual director of Empowered Endings. Elizabeth has also been a bereavement counselor using the concept of "transformational grief" to aid individuals who have experienced losses and help them discover ways of finding meaning. In this episode she will dive deep into this important concept of …
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Deprescribing Medications with DeLon Canterbury
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More than half of Americans take four or more medications a day. That number increases to at least seven when we add over-the-counter medications. All of these have side effects and interactions. Today my guest is DeLon Canterbury, Founder of Geriatrix.org who hopes to revolutionize the way we look at medications by educating the public on deprescr…
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Elizabeth Uslander Believes Spirituality is Medicine for the Soul
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Elizabeth Uslander is a medical social worker and a spiritual counselor, and the co-founder of Empowered Endings with her husband, Dr. Bob Uslander. In this episode Elizabeth shares how spirituality and spiritual practices can be medicine for the soul. She believes this is especially true for someone at the end of life. She also discusses how spiri…
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Dr. Bob Uslander Shares How to Make Difficult Conversations Easier
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In the current culture, conversations about death are often avoided, but Dr. Bob Uslander shines a light on the importance of embracing these discussions with openness and empathy. As the founder of Empowered Endings and a physician of 30 years specializing in end-of-life care, Dr. Uslander brings a wealth of experience and wisdom about how to make…
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Preventing Dementia with Dr Mitchell Clionsky
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Dementia. While we know it’s a progressive, neurodevelopmental condition with over 200 types, there are still many questions of why and how it occurs. My guest, Mitchell Clionsky, PhD is a board-certified clinical neuropsychologist with 45 years of experience evaluating and treating patients with cognitive impairment, dementia, ADHD, and traumatic …
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How to Create an Advance Care Plan with Dr. Bob Uslander
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Navigating the complexities of end-of-life decisions can be daunting. In this episode Dr. Bob Uslander will shed light on the importance of proactive planning and how it can empower individuals and families during the critical moments at end of life. Dr. Uslander brings a wealth of expertise and compassion to the podcast, with over 30 years of expe…
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Harbor Foundation Announces New Student Scholarships
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Since 2005, the Harbor Foundation has been assisting hospice patients and their families through hardship grants. These grants cover essential expenses such as electricity bills, appliances, and rent, all aimed at ensuring the comfort of hospice patients. The Harbor Foundation is expanding its support by offering scholarships to nursing students an…
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Finding Meaning in Caregiving with Dr Allison Applebaum
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Dr Allison Applebaum is an Associate Attending Psychologist in the Department of Psychiatry and Behavioral Sciences at Memorial Sloan Kettering Cancer Center (MSK), and also the Founding Director of their Caregivers Clinic the first of its kind in any Comprehensive Cancer Center in the US. Dr Applebaum amplifies the voices of family caregivers in h…
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A Unique Tool to Make the Uncomfortable Conversations Easier
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Despite the fact that most end of life professionals work with people who are nearing death, it's sometimes uncomfortable for them to discuss death and dying with the patient or family. Lisa Pahl is a hospice social worker and understands the challenge of uncomfortable conversations, so she and her creative partner, Lori LoCicero, created a spinoff…
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A Unique Way to Talk About Death: The Death Deck Game
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Most of us are uncomfortable talking about death, whether it's our death or the death of someone we love. Death will eventually affect everyone, however, and it's better to be prepared for it. If you have difficulty having a conversation with the people you are close to about your end of life wishes, there's a game that can help make it easier. The…
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The Final Days of Hospice and What to Expect with Barbara Karnes
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Today my guest is Barbara Karnes, an Award Winning Nurse and End of Life Educator. She was NHPCO (The National Hospice and Palliative Care Organization) Hospice Innovator Award Winner of 2018 & the 2015 International Humanitarian Woman of the Year. Barbara has put her 40 years of experience regarding education, care, and support of dying people and…
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Grief Counseling is One of the Hidden Benefits of Hospice
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Hospice does more than just provide care to a person who is facing the end of their life, we also help those who are close to this person, both before and after the person’s death. Hospice is also there to provide grief support, through grief counseling and grief therapy. In fact, most hospices will provide some level of grief support for up to a y…
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The Most Useful Tips for Creating Your Advance Care Plan
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One of the priorities of every hospice team member is to help prepare the patient and family for whatever might happen in the future. We want them to be as prepared as possible, and one of the ways we do that is by helping them to create advance care planning documents. To provide information and assistance about how to create advance care plans is…
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Navigating a Hospital Stay, Rehab and Home with Dianne Savastano
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No matter the reason you enter a hospital, it's intimidating, and the process is not self-explanatory. Each step from admission to discharge to rehab to home is fraught with managing communication and decisions. My guest Dianne Savastano can help. Diane is founder and principal of Health Assist a Massachusetts based company founded in 2004 that spe…
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What Happens When Hospice Professionals Experience Personal Grief
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Maryclaire Torinus is a hospice chaplain serving in her home state of Wisconsin. She is our first external guest on Lighting the Path. As a professional hospice provider Maryclaire experienced a very personal grief event when her husband died. Maryclaire shares how this experience affected her as a hospice professional. Our thanks to Maryclaire for…
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BONUS - 2023 Policy Recap with Anne Tumlinson and Howard Gleckman
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In today's Bonus policy episode, Howard Gleckman joins Anne in discussing policy changes in 2023. Howard is a published author and writer whose professional expertise is founded on long-term care, health care, elder care, tax policy, budget policy and economics. Howard was also a senior correspondent in the Washington bureau of Business Week. In ou…
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Expert Tips for Caregivers Who Need Self Care
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Caregivers are the backbone of the care that’s provided for a hospice patient. Many of them are family members who are there 24 hours a day, 7 days a week. It can be exhausting. On this episode Rosalind Hall-Hiner, the System Director of Social Workers for Harbor Hospice, is providing some practical tips and strategies for self care. If you’re a ca…
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How to Avoid Caregiver Depression During the Holidays
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The holiday season is loaded with hopes and dreams and expectations. For those who are providing care for someone on hospice the holidays can be difficult to manage. Rosalind Hall-Hiner is the System Director of Social Workers for Harbor Hospice and Beacon Hospice. In this episode she shares ways that caregivers can avoid the depression that often …
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After Caregiving with Connie Baher
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Connie Baher is a writer and speaker on caregiving and re-imagining retirement. Her latest book is Family Caregivers: An Emotional Survival Guide. Published in USA Today, The New York Times Magazine, Forbes, and The Boston Globe, she is also the author of "The Case of the Kickass Retirement." She is a Harvard MBA, an entrepreneur, and a former tech…
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Practical Information About the Most Common Hospice Diagnoses Part 2
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In part two of our series on the most common hospice diagnoses, Hannah Brightwell, clinical liaison with Harbor Hospice explains about the characteristics and hospice criteria for cancer diagnoses and lung diseases. In part one she explained the hospice criteria for neurological and cardiac diseases. Follow Harbor Hospice on Facebook. Follow Beacon…
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Practical Information About the Most Common Hospice Diagnoses, Part 1
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In the early days of hospice care in the United States, cancer was the main reason someone might be admitted to hospice. Now, 50 plus years later, cancer is the third most common diagnosis in hospice. The most common group of diagnoses today are neurological diseases such as Alzheimer's, dementia, and Parkinson's, followed by heart disease. Hannah …
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Why Daughterhood? with Anne Tumlinson and Andrea Cohen
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The challenge of caring through a broken healthcare system is something every caregiver lives through. My guests today, Daughterhood Founder Anne Tumlinson and Daughterhood Interim CEO Andrea Cohen know those challenges personally and professionally. Today we discuss their personal experiences as caregivers, what drives them to create change, the i…
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How to Manage Grief During the Holidays
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November is almost here and that means the holidays are right around the corner. For many people the holidays are not a season of joy and cheer, but a time of grief and sadness. Holidays are times when families come together and the death of an important person in the family can make holidays feel heavy. In this episode, Polly Stock, Bereavement Co…
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Finding Hope in Grief With Bereavement Support Groups
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Grief and loss are experiences that are never easy to navigate. The emotions are like waves on the ocean--just when you think the waters are finally calm, another wave hits you. Harbor Hospice and Beacon Hospice are here to help you navigate the sometimes choppy waters of grief and bereavement. Bereavement support groups are one of the services tha…
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Providing Care at Home with Courtney Hogenson
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Courtney Hogenson is a registered nurse, entrepreneur, and innovator with over a decade of experience in the healthcare industry. As a certified care manager and a legal nurse consultant, Courtney has extensive expertise in elder care and patient advocacy and has served as a primary liaison and medical advisor for patients and families. Courtney is…
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Hospice Chaplains Honor the Spiritual Life of People at End of LIfe
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October is Clergy Appreciation Month and we want to recognize these remarkable individuals who provide spiritual care to patients and their families in hospice. They come from various faith backgrounds and are well-trained in offering support to individuals from diverse belief systems. Our guest is spiritual counselor Polly Stock from Harbor Hospic…
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BONUS - How Policy Affects Nursing Home Quality with Anne Tumlinson and David Grabowski, Ph.D.
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David C. Grabowski, PhD, is a professor of health care policy in the Department of Health Care Policy at Harvard Medical School. His research examines the economics of aging with a particular interest in the areas of long-term care and post-acute care. From 2017-2023 Dr. Grabowski was a member of the Medicare Payment Advisory Commission (MedPAC), w…
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How to Make the Caregiving Experience Easier and Better
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Being a caregiver for someone on hospice is one of the most critical roles on the hospice team. If you're a caregiver, you are with the patient more than anyone else, sometimes 24 hours a day. It can be challenging and difficult to manage the many aspects of care for this person. In this episode of Lighting the Path, Jerry provides 7 tips to help m…
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African American Dementia Caregiver Daughters: The Important Need for Support
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Dr. Kalisha Bonds Johnson is an Assistant Professor on the Tenure track at Emory University’s Nell Hodgson Woodruff School of Nursing in Atlanta, Georgia. She earned her BSN, MSN and PhD in nursing and specializes as a Family Psychiatric Mental Health Nurse Practitioner. In 2019, she earned her Ph.D. from Oregon health and science university where …
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Understanding the DNR Decision in Hospice Care
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One of the most difficult and emotionally charged decisions a person can make is related to a Do Not Resuscitate order. The Do Not Resuscitate order is an advance care planning document that allows a person to die a natural death without any medical interventions, such as CPR, intubation, or any other mechanical devices. In this episode, Hannah Bri…
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Inpatient Hospice Care: Enhancing Quality of Life
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One of the many valuable benefits of hospice care are the 4 levels of care provided, depending on what each patient may need. In this episode information is shared about the 2 most widely used levels of care, Routine Home Care and General Inpatient. This episode focuses on Inpatient Hospice Care and how it can improve the quality of life for patien…
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