A Fathers Search For a Cure - Rare Genetic Disease - Casey Mcpherson

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Innehåll tillhandahållet av Rami Wehbi, Dr. Rami Wehbi, and DO. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Rami Wehbi, Dr. Rami Wehbi, and DO eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.

1+ y ago 44:18

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Casey Mcpherson is a Musician and Artist on a mission to find a cure for his daughter Rose. Rose is a 6-year-old girl who was born with a rare genetic disease. Faced with a grim prognosis, Casey set out on a path to find a cure for his daughter by starting a lab a building a team to find a cure.

You can learn more about Rose here at the To Cure a Rose Foundation. To connect with Casey, you can find him on Linkedin here. https://www.linkedin.com/in/caseymcpherson/

Episode Notes:
1. What is the story of Casey and Rose.
2. The problem with rare genetic disease funding.
3. Running a genetic disease research company.
4. The moment of diagnosis. Facing denial. Grieving. Finding Purpose.
5. What is Rose like.
6. The problems of finding a cure for rare genetic diseases.
7. How does gene therapy work?
8. What Casey has learned in this process.

75 episoder

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