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Episode #6 - Funding for Rare Disorders and COVID-19
Manage episode 294471722 series 2937012
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Featuring Durhane Wong-Rieger, PhD, President & CEO, Canadian Organization for Rare Disorders (CORD).In this episode we have the pleasure of speaking with Durhane Wong-Rieger and exploring rare disorders in a world struggling to cope with COVID-19. Durhane explains the important role of CORD in advocating on behalf of rare disorders. She also speaks to the definition of a rare disorder and the number of individuals diagnosed in Canada. Plus we explore the difference between a drug for a rare disorder and an orphan drug as well as their cost and the public/private split for funding of these drugs.Finally, Durhane gives us an update on the creation of a national strategy to fund drugs for rare disorders and diseases, the challenges of our current environment, particularly the impact of COVID-19, and to what extent a national strategy is likely to reduce pressure on private drug plans.Recorded June 26, 2020.Find out more information on upcoming podcasts and webinars at https://connexhc.com
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