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Transition
Manage episode 321156362 series 3236617
Innehåll tillhandahållet av David Cunnington and SCN2A Australia. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av David Cunnington and SCN2A Australia eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Transitioning children with complex health needs such as those with SCN2A or other developmental epileptic encephalopathies is challenging.
Dr Danielle Andrade from University of Toronto has been instrumental in producing a number of transition guides and her ongoing research hopes to help further improve the process of transition. People aged 18 years or older can participate in this research by contacting Marlene Rong via marlene.rong@uhnresearch.ca
You can listen to and subscribe to the SCN2A Insights podcast via Apple Podcasts, Spotify, and Google Podcasts or in your podcast app. This podcast series is supported by an educational grant from Praxis Precision Medicines.
Links:
- Dr Andrade bio
- Dravet syndrome (SCN1A) transition guide
- Video on transition research for people aged 18+
- To participate in current research contact Marlene Rong via marlene.rong@uhnresearch.ca
See omnystudio.com/listener for privacy information.
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