Living with Autism and EDS | Finding Your Range Podcast S2:E7

Finding Your Range Podcast : Hypermobility and Chronic Pain Uncovered with Jeannie Di Bon

In this episode of Finding Your Range, we talk to Jane Green. In June 2018 Jane founded SEDS to increase local specialised support and improve awareness, knowledge and understanding of EDS/HSD and co-occurring conditions plus advocate in key areas of health, social care, education and transport accessibility locally. ​Previously, she taught at St Piers special epilepsy/autism school, she was an advisory autism teacher at a Local Authority, lead educationalist at NAS and helped design and led the AET training plus Assistant Headteacher. ​Unfortunately, her health declined and after being labelled ‘bendy' she was diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia stopping her career in 2015. Only then she received a diagnosis of EDS3 now hEDS, but was immediately discharged as there was no defined treatment protocol. Currently, Jane champions symptomatic hypermobility and autism health on various health and research organisations, education and social care groups and air transport forums. She led the first UK school toolkit for symptomatic hypermobility and co-occurrences in EDS and JHS for primary and secondary schools which has already travelled overseas, in 2021. Recently she submitted her first manuscript. Please welcome Jane to the podcast. Please note this material is not designed to replace any medical advice. Please do speak to your medical practitioner if you have any concerns.