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Ep 208: Mia Polacek and Edwards Syndrome Association (Trisomy 18)
Manage episode 427359877 series 3483971
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Jeanna Polacek, mom to 5 year old Mia who has full Trisomy 18 and co founder of Edwards’ Syndrome Association joins Extra To Love: A Trisomy Podcast to discuss their surprising birth diagnosis, the milestones Mia has reached, the relationship Mia has with her baby sister, as well as the heart and mission of Edwards’ Syndrome Association. We also discuss the intentionality behind choosing to use ‘Edwards Syndrome’, following in the foot steps of the Down syndrome (trisomy 21) community.
To connect with ESA visit edwardssyndrome.org or find them on social media @edwardssyndromeassociation
Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.
To receive support or learn more about our mission, visit www.extratolove.org
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