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Innehåll tillhandahållet av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
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2: Raising young children with PKU - an interview with Lacy Shaffer and Julie Bolduc DeFilippo

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Manage episode 303617693 series 2989272
Innehåll tillhandahållet av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Moms Lacy and Julie: Raising children with phenylketonuria (PKU)
Forming community is essential for many people and caregivers living with rare metabolic disorders. In this episode, moms Lacy and Julie, who didn’t know each other previously, tell their stories of bringing up children with phenylketonuria (PKU). They cover navigating their children’s special diets with family and friends, dealing with feelings of isolation, as well as the joys of watching their children grow from babies to personality-filled kids!

This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is Look Inside by Sirus Music, and Sunbang by Elephant Music.

  continue reading

6 episoder

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iconDela
 
Manage episode 303617693 series 2989272
Innehåll tillhandahållet av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Moms Lacy and Julie: Raising children with phenylketonuria (PKU)
Forming community is essential for many people and caregivers living with rare metabolic disorders. In this episode, moms Lacy and Julie, who didn’t know each other previously, tell their stories of bringing up children with phenylketonuria (PKU). They cover navigating their children’s special diets with family and friends, dealing with feelings of isolation, as well as the joys of watching their children grow from babies to personality-filled kids!

This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is Look Inside by Sirus Music, and Sunbang by Elephant Music.

  continue reading

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