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Innehåll tillhandahållet av Audacy. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Audacy eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
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Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth, her mother

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Manage episode 434212527 series 2447275
Innehåll tillhandahållet av Audacy. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Audacy eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.

Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.

Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund

Clinic is her special place, around people that love, care and always want what is best for her and her family.

Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

500 episoder

Artwork
iconDela
 
Manage episode 434212527 series 2447275
Innehåll tillhandahållet av Audacy. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Audacy eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.

Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.

Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund

Clinic is her special place, around people that love, care and always want what is best for her and her family.

Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

500 episoder

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