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Zebra Talks: Living Your Best Bendy Life
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Innehåll tillhandahållet av Dr Libby Hinsley. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Dr Libby Hinsley eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.
…
continue reading
26 episoder
Markera alla som (o)spelade ...
Manage series 3515056
Innehåll tillhandahållet av Dr Libby Hinsley. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Dr Libby Hinsley eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.
…
continue reading
26 episoder
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Zebra Talks: Living Your Best Bendy Life
1 Heavy Lifting and Hypermobility with Nikki Naab-Levy 49:29
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49:29In this episode of Zebra Talks, host Dr. Libby Hinsley welcomes Nikki Naab-Levy, a certified strength and nutrition coach with extensive experience in helping hypermobile individuals. Nikki shares her personal journey with hypermobility and discusses the benefits of strength training for those with hypermobility syndromes. They explore the importance of understanding one's limits, the concept of rate of perceived exertion (RPE), and how to adjust training programs appropriately. The conversation also touches on the significance of proper nutrition and body autonomy. Listeners are provided with practical advice on how to approach strength training safely and effectively, even when dealing with chronic conditions. Highlights of this episode include: 00:00 Introduction to Zebra Talks 00:35 Meet Nikki Naab-Levy 01:29 Nikki's Personal Journey with Hypermobility 04:16 The Benefits of Strength Training for Hypermobile People 04:40 Understanding 'Heavy' in Strength Training 06:43 Approach to Strength Training for Hypermobile Individuals 15:53 Progressing in Strength Training 23:52 The Importance of Deloading 25:11 The Importance of Deload Weeks 25:45 Listening to Your Body's Cues 27:52 Adjusting Workouts for Hypermobility 31:39 Indicators for Slowing Down 32:13 Mental Strategies for Setbacks 37:11 Nutrition and Recovery for Hypermobility 40:30 The Role of Alignment and Load 46:41 Final Thoughts on Body Autonomy 48:32 Where to Find More Information…
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Zebra Talks: Living Your Best Bendy Life
1 Understanding Hypermobile Bodies: Insights from Dr. Mamak Shakib 51:48
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51:48In this episode of Zebra Talks, host Dr. Libby Hinsley talks with Dr. Mamak Shakib, a chiropractic physician specializing in functional mobility, joint hypermobility, and pelvic floor dysfunction. Dr. Shakib shares her 30-year journey in treating hypermobile patients, emphasizing the importance of developmental kinesiology and dynamic neuromuscular stabilization (DNS) for sustainable joint health and stability. She discusses common issues faced by hypermobile individuals in traditional chiropractic and rehabilitation settings, the significance of tailored approaches, and the role of proper breathing techniques in maintaining functional stability. The episode sheds light on Dr. Shakib's unique methodologies and her advocacy for better communication and understanding between healthcare providers and patients with hypermobility syndromes. Highlights of this episode include: 00:00 Introduction to Zebra Talks 00:35 Meet Dr. Mamak Shakib 01:58 Discovering Hypermobility 07:23 Challenges in Traditional Rehabilitation 20:55 Dynamic Neuromuscular Stabilization (DNS) 34:05 Breathing Techniques for Bendy People 45:45 Final Thoughts and Resources…
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Zebra Talks: Living Your Best Bendy Life
1 Navigating Hypermobility and Fibromyalgia with Dr. Melissa Koehl 39:47
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39:47In this episode of Zebra Talks, host Dr. Libby Hinsley welcomes Dr. Melissa Koehl to discuss her journey with Hypermobile Ehlers-Danlos Syndrome (EDS) and how it has shaped her career in physical therapy. Melissa shares her personal struggles with diagnosis, the importance of recognizing hypermobility in the context of fibromyalgia, and the intersection of these conditions with other systemic issues like dysautonomia and mast cell activation syndrome. She also discusses the significance of personalized exercise programs, gut health, and the holistic approaches necessary to manage these complex conditions effectively. 00:00 Introduction to Zebra Talks 00:35 Meet Melissa Kahle: A Journey with Hypermobile EDS 01:40 Melissa's Personal and Professional Journey 03:35 The Diagnosis and Its Impact 06:19 Exploring Fibromyalgia and Hypermobility 06:48 Understanding Fibromyalgia: Diagnosis and Criteria 12:04 Treatment Approaches for Fibromyalgia 16:13 Exercise and Movement Strategies 22:35 Exploring Mast Cells and Fibromyalgia 24:28 The Gut Microbiome and Pain Connection 24:53 Personal Struggles with SIBO 29:20 Navigating Healthcare as a Hypermobile Human 31:59 Creating Resources for the Hypermobile Community 37:33 Final Thoughts and Resources…
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Zebra Talks: Living Your Best Bendy Life
1 Bendy Brains: Hypermobility, Anxiety, and Neurodivergence with Dr. Jessica Eccles 41:18
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41:18In this episode of Zebra Talks, host Dr. Libby Hinsley welcomes Dr. Jessica Eccles, a prominent consultant psychiatrist and researcher, to discuss her personal and professional experiences with hypermobility syndromes. Dr. Eccles shares insights from her extensive research on the links between hypermobility, anxiety, neurodevelopmental conditions, and chronic health issues such as fibromyalgia and ME/CFS. She explains how differences in brain structure and function, along with abnormal autonomic nervous system responses, can affect those with hypermobility. Dr. Eccles also introduces a novel treatment approach, the ADAPT therapy, designed to reduce anxiety in hypermobile individuals. The conversation highlights the importance of proper diagnosis, medical education, and innovative therapeutic strategies for managing these complex conditions. 00:00 Introduction to Zebra Talks 00:35 Meet Dr. Jessica Echols 01:34 Dr. Echols' Personal Journey with Hypermobility 04:00 Discovering the Link Between Hypermobility and Anxiety 08:50 Exploring Brain Differences in Hypermobile Individuals 11:00 The Role of the Involuntary Nervous System 17:02 Novel Treatments and Future Research 21:05 Connections Between Hypermobility and Neurodivergence 35:45 Challenges and Future Directions in Medical Education 39:53 Conclusion and Final Thoughts…
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Zebra Talks: Living Your Best Bendy Life
1 Understanding Upper Cervical Instability with Taylor Goldberg 41:32
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41:32If you have a bendy neck, this one's for you! For this week's episode of Zebra Talks, Libby has a fascinating conversation with Taylor Goldberg, a chiropractor turned virtual hypermobility coach. Taylor shares a bit about her personal journey with hypermobility and her shift to a virtual coaching model, and then helps us understand all things upper cervical instability (UCI), including its causes, symptoms, diagnostic challenges, and treatment options. UCI affects a whole lot of people with hypermobility, but good news: the most severe cases requiring surgery are quite rare even among us bendy types. Whew! Taylor unpacks a lot of definitions such as distinguishing between hypermobility and instability (no, they're not the same thing!). She also covers lots of good info about safe exercise practices, and emphasizes why it's so important to avoid certain chiropractic adjustments. The episode also touches on yoga practices for hypermobile individuals and the significance of conservative care in managing UCI. Highlights of this episode include: 00:00 Introduction to Zebra Talks 00:35 Meet Taylor Goldberg: Chiropractor to Hypermobility Coach 01:49 Taylor's Personal Journey with Hypermobility 03:40 Understanding Hypermobility and Instability 06:11 Upper Cervical Instability: Symptoms and Diagnosis 14:42 Managing Upper Cervical Instability 19:01 Activities to Avoid and Chiropractic Cautions 24:12 Challenges in Chiropractic and PT Training 25:23 The Need for Comprehensive Connective Tissue Education 27:02 Creating Realistic Expectations in Recovery 27:49 Step-by-Step Recovery Process 29:39 Exercise Categories and Proprioception 33:46 Managing Upper Cervical Instability 35:01 Yoga and Hypermobility 39:11 Resources and Offerings for Hypermobility 41:16 Conclusion and Final Thoughts…
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Zebra Talks: Living Your Best Bendy Life
1 Bendy Belly Trouble with Lisa Sherman 1:11:05
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1:11:05In this episode of Zebra Talks, Dr. Libby Hinsley welcomes Lisa Sherman, a licensed acupuncturist with expertise in functional medicine and molecular biology, to discuss digestive issues among people with hypermobility syndromes. They delve into the prevalence of gastrointestinal problems like dysmotility, microbial dysbiosis, and structural droopiness that hypermobile individuals often face. Lisa offers insights on contributing factors such as the autonomic nervous system and mast cell activation, and shares practical advice for lifestyle changes, nutritional strategies, and supplements that can help manage these conditions. The episode highlights the importance of mindful eating, movement practices, and vagus nerve activation for improving gut health in hypermobile individuals. Highlights of this episode include: 00:35 Meet Lisa Sherman: Expert on Bendy Bellies 01:39 Understanding Digestive Issues in Hypermobile People 02:56 Prevalence and Impact of GI Issues 04:00 Common GI Conditions in the Bendy Population 07:03 Functional Gastrointestinal Disorders (FGIDS) 08:54 The Role of the Nervous System in Digestion 11:14 Hypermobile Gut and Hypomotility 18:19 Testing and Treating Gut Motility Issues 28:54 The Bendy, Itchy, and Dizzy Trifecta 37:57 Understanding Functional Gastrointestinal Disorders 39:24 Practical Tips for Gut Health 43:44 The Importance of Protein and Collagen 49:15 Navigating Histamine and FODMAPs 56:47 Supplements and Prokinetics 01:04:15 Vagus Nerve Stimulation and Lifestyle Changes 01:08:53 Research and Future Directions 01:10:25 Conclusion and Contact Information…
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Zebra Talks: Living Your Best Bendy Life
1 The Science of Stretching with Jules Mitchell 41:21
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41:21In this episode of Zebra Talks, Libby welcomes biomechanics expert Jules Mitchell to discuss the science of stretching and connective tissue behavior, particularly in the context of hypermobility syndromes. Jules provides insights from her extensive research and professional experience, addressing common misconceptions about stretching, the adaptive capabilities of connective tissue, and how people with hypermobility can safely engage in physical activities. The discussion includes the impact of mechanical tension on tissue adaptation, the importance of understanding individual responses to stretching, and the role of exercise science in improving joint stability and resilience. Jules, who is also the author of 'Yoga Biomechanics Stretching Redefined' and an educator of yoga teachers worldwide, shares valuable perspectives on the interplay between biomechanics and yoga practices, offering practical advice for both practitioners and instructors. 00:35 Meet Jules Mitchell: Yoga Biomechanics Expert 02:18 Jules' Journey into Stretching Research 04:55 Understanding Connective Tissue and Hypermobility 12:46 The Science of Stretching and Tissue Adaptation 18:37 Practical Advice for Bendy People 40:22 Final Thoughts and Resources…
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Zebra Talks: Living Your Best Bendy Life
1 Unraveling Endometriosis and Hypermobility with Alanna Trzcinski 42:54
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42:54In this Zebra Talks episode, host Dr. Libby Hinsley interviews Alanna Trzcinski, host of the Endo Battery Podcast and president of EndoVillage. The episode delves into Alanna's journey with endometriosis, advocacy work, and the surprising intersections with hypermobility syndromes. Alanna sheds light on the challenges of living with both conditions, the importance of excision surgery for endometriosis, and the nuanced nature of these overlapping chronic illnesses. The two discuss the critical role of multidisciplinary care, the need for increased research, and the psychological aspects of managing chronic pain. Listeners will gain valuable insights into the complexity of these conditions and the importance of informed, holistic care. Highlights of this episode include: 00:35 Meet Alanna Trzcinski: Advocate for Endometriosis Awareness 02:24 Alana's Personal Journey with Endometriosis 05:21 Understanding Endometriosis: Definitions and Misconceptions 07:25 The Overlap Between Endometriosis and Hypermobility Syndromes 11:33 Challenges in Diagnosing and Treating Endometriosis 15:18 Effective Management and Treatment Options 18:54 The Importance of Multidisciplinary Care 24:54 Surgical Treatments: Excision vs. Ablation 31:20 Living with Endometriosis and Hypermobility 34:08 Advocacy and Future Research 40:39 Final Thoughts and Resources…
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Zebra Talks: Living Your Best Bendy Life
1 Managing Long COVID and Dysautonomia in the Hypermobile Community with Naomi Bauer 43:44
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43:44This episode of Zebra Talks features a discussion with Naomi Bauer, a Doctor of Physical Therapy with personal and professional experience in treating dysautonomia and Long COVID. Hosted by Dr. Libby Hinsley, they explore the challenges and management strategies for those living with hypermobility syndromes, focusing on the overlap between long COVID, dysautonomia, and hypermobility. Naomi shares her journey from a healthcare professional to a patient after developing long COVID dysautonomia herself and highlights the importance of understanding personal energy management through pacing and the 50 percent rule. The conversation also addresses potential underlying connections between hypermobility and the increased risk of developing long COVID, emphasizing the significance of social support, proactive resting, and setting boundaries for energy use. Highlights of this episode include: 00:32 Meet Naomi Bauer: A Journey from PT to Long COVID Survivor 01:42 Exploring the Intersection of Long COVID and Hypermobility Syndromes 01:56 Naomi's Personal Battle with Long COVID and Suspected Hypermobility 05:55 The Complex World of Dysautonomia: From POTS to Long COVID 14:28 The Link Between Hypermobility Syndromes and Long COVID 23:47 Managing Long COVID and Hypermobility: Strategies for Recovery 41:24 Concluding Thoughts and Finding Support…
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Zebra Talks: Living Your Best Bendy Life
1 Navigating Hypermobility and Perinatal Health with Megan Beach Gomes 35:50
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35:50In this episode of the Zebra Talks podcast, host Libby Hinsley interviews Megan Beach Gomes, a specialized pelvic health physical therapist focusing on pelvic pain and perinatal care. She discusses her journey into specializing in pelvic health and the importance of physical therapy for pregnant and postpartum individuals, especially those dealing with hypermobility. Gomes highlights the key role of the hormone relaxin during pregnancy and its effects on the body's mobility, the challenges hypermobile individuals may face during and after pregnancy, and provides practical advice and exercises to help manage symptoms. Gomes emphasizes the need for comprehensive care, including pelvic support belts, specific exercises, and how to deal with issues such as diastasis recti postpartum. She also touches on finding specialized help through resources like the EDS Society, the importance of patient advocacy, and options like telehealth for individuals with limited access to specialized care. Highlights of this episode include: - Welcome to Zebra Talks: Introducing Megan Beach Gomes - Journey into Pelvic Health: Megan's Story - Understanding Hypermobility in Pregnancy - Managing Pregnancy Symptoms for the Hypermobile - Navigating Labor and Delivery with Hypermobility - Preparation and Advocacy for Hypermobile Pregnant Persons - Pregnancy Wellness Tips for the Hypermobile - Ergonomic Supports for Comfortable Sitting - Exercise Tips for Pregnancy with Increased Laxity - Hip Hinge: The Ultimate Exercise for Pregnancy - Managing Pelvic Girdle Pain with Simple Adjustments - Postpartum Considerations for the Bendy Population - Navigating Postpartum Recovery: Scar Care and Core Support - Addressing Diastasis Recti in Postpartum Recovery - Preventing and Managing Mommy Thumb Postpartum - Finding Specialized Perinatal Physical Therapy…
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Zebra Talks: Living Your Best Bendy Life
1 Gender Affirming Care and Hypermobility with Dr. Laura Ross 37:18
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37:18In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the intersection of hypermobility syndromes and gender affirming care with Dr. Laura Ross, a pelvic health physical therapist and sex counselor. Dr. Ross, based in Decatur, Georgia, shares her journey and passion for providing inclusive care for all genders, focusing on pelvic pain, sexual health, pelvic health in athletes, and care specific to transgender and gender expansive individuals. She emphasizes the importance of creating a safe space for LGBTQ+ patients, especially those dealing with hypermobility. Their conversation explores the high prevalence of hypermobility among individuals seeking gender affirming surgeries, citing research that highlights a significant connection between hypermobility and gender diversity. The conversation also covers the importance of comprehensive care that includes prehabilitation, rehabilitation, and the consideration of sensory processing issues. Dr. Ross stresses the necessity for healthcare providers to develop competencies in treating gender diverse individuals, suggesting resources for both patients and practitioners. The episode aims to raise awareness about the need for accessible and affirming healthcare for hypermobile and gender diverse communities. Highlights of this episode include: 00:38 Introducing Dr. Laura Ross: A Journey into Pelvic Health and Gender Affirming Care 02:24 Exploring the Intersection of Hypermobility and Gender Affirming Care 04:39 Demystifying Gender Affirming Care: Terminology and Importance 10:35 The Link Between Hypermobility and Gender Diversity: Emerging Research 22:17 Gender Affirming Surgeries and Hypermobility: Pre and Postoperative Considerations 39:19 Empowering Healthcare: Inclusivity and Competency in Gender Diverse Care 45:46 Connecting with Dr. Laura Ross and Final Thoughts…
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Zebra Talks: Living Your Best Bendy Life
1 Pelvic Health Challenges in the Hypermobility Community 38:35
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38:35In this episode of Zebra Talks, host Dr. Libby Hinsley delves into the complexities of pelvic health in individuals with hypermobility syndromes with special guest Beth Kemper. Beth is a seasoned physical therapist with dual certification in Women's Health and Pelvic Health. She discusses the prevalence of hypermobility among her pelvic PT patients and the unique challenges they face. The conversation covers a range of pelvic-related issues, including elimination dysfunctions, pelvic organ prolapse, gynecological concerns, and pelvic pain, offering insights into their treatment. Beth emphasizes the importance of a comprehensive approach that includes manual therapy and retraining of the pelvic floor and related muscle groups, alongside utilizing support devices where necessary. Additionally, the podcast touches on the importance of proper diagnosis and the potential impact of surgeries. Listeners are encouraged to seek skilled pelvic PTs, and the episode underscores the importance of hope and proactive care in managing pelvic health for the hypermobile population. Highlights of this episode include: 00:36 Meet Beth Kemper: A Deep Dive into Pelvic PT and Hypermobility 01:23 Exploring the Prevalence and Impact of Hypermobility in Pelvic PT 04:09 Unpacking Common Pelvic Issues in the Bendy Population 11:58 Addressing Incontinence and Elimination Challenges 13:01 Comprehensive Treatment Approaches for Pelvic Conditions 18:58 The Importance of Tailored Rehabilitation for Hypermobility 20:04 Exploring Supportive Devices and Surgical Considerations 32:40 Finding the Right Pelvic PT: Tips and Advice 37:11 Final Thoughts and Upcoming Episodes…
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Zebra Talks: Living Your Best Bendy Life
1 Drop it Like it's POTS with Emily Rich, OT 43:38
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43:38This episode of Zebra Talks features Dr. Libby Hinsley, physical therapist and author, hosting Emily Rich, an occupational therapist with a focus on treating Ehlers Danlos syndromes, dysautonomia, and related conditions. The discussion begins with Emily sharing her personal journey with Hypermobile Ehlers Danlos Syndrome and her motivation for specializing in this field. She explains the role of occupational therapy in managing these conditions, emphasizing patient-partnered, evidence-based treatment approaches to improve daily living activities. The conversation delves into the nuances of dysautonomia, particularly Postural Orthostatic Tachycardia Syndrome (POTS), detailing its symptoms, diagnosis, and the three main types: neuropathic, hypovolemic, and hyperadrenergic POTS. Emily outlines the 'big five' non-pharmacological management strategies (compression, increasing blood volume, exercise/movement, managing anxiety, and sleeping on an incline) and discusses the importance of pharmaceutical management. She stresses the significance of tailored treatment plans, the potential of vagus nerve stimulation, and encourages seeking knowledgeable healthcare providers. Emily ends by highlighting resources for both patients and healthcare professionals looking to learn more about managing POTS and related conditions. Highlights of this episode include: 00:33 Introducing Emily Rich: A Deep Dive into Occupational Therapy for EDS and POTS 01:32 Emily's Personal Journey with Hypermobility and Career Shift 02:40 The Role of Occupational Therapy in Managing Chronic Conditions 03:45 Exploring Dysautonomia and POTS: Definitions and Diagnoses 07:34 The Common Forms of Dysautonomia in Hypermobility Syndromes 10:57 Diagnosing POTS: Techniques and Challenges 11:53 Understanding the Different Types of POTS 21:47 Non-Pharmacological Approaches to Managing POTS 33:38 Pharmaceutical Management of POTS: A Critical Overview 37:09 Innovative Treatments and the Future of POTS Management 39:53 Empowering Patients and Providers: Resources and Education 42:22 Closing Thoughts and Resources for Further Learning…
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Zebra Talks: Living Your Best Bendy Life
1 The Body Braid and its Benefits for Hypermobility Syndromes 43:32
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43:32In this edition of Zebra Talks, Libby welcomes Blair Voyvodic, the developer of an innovative product called the Body Braid. Blair, a former physician with a background in biophysics, shares the story of his career shift from academic research to providing person-focused service, leading to his work in a small village in Canada. Blair's work was influenced by his experience with an organization that inspired the movie 'Patch Adams', which takes an unconventional approach to healthcare. The discussion then delves into Blair's personal struggle with hypermobility and how it led to the development of the Body Braid, a product that supports connective tissue and improved proprioception, and provides relief for those with hypermobility syndromes and Ehlers Danlos. Blair shares details about the Body Braid's design, use, and its benefits, alongside his experiences with the EDS Society and its role in promoting awareness. Highlights of this episode include: Blair's Journey and Inspiration from Patch Adams Blair's Personal Experience with Hypermobility The Birth of the Body Braid Understanding the Body Braid The Impact of the Body Braid on Hypermobility The Science Behind the Body Braid Understanding Collagen and its Role in Hypermobility Understanding Sensory Receptors in Connective Tissue The Importance of Tension in Connective Tissues Experiencing Gaslighting in Medical Settings The Role of the EDS Community in Understanding Connective Tissue Disorders Misconceptions and Confusions about Hypermobility The Body Braid: A New Approach to Postural Support Understanding the Body Braid: Usage and Benefits The Challenges and Solutions in Using the Body Braid The Evolution and Adaptation of the Body Braid The Body Braid as a Tool for Sensory Feedback and Movement Control The Body Braid: A Wearable Set of Movement Brakes The Body Braid: A Tool for Everyone, Not Just the Hypermobile Conclusion: The Future of the Body Braid and Its Impact on Healthcare…
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Zebra Talks: Living Your Best Bendy Life
1 Nutrition Management for Hypermobility Syndromes with Savita Sandhu 36:27
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36:27For this episode, Libby welcomes Savita Sandhu (Savvy) onto the Zebra Talks Podcast to discuss the impact of hypermobility syndromes on nutrition and daily living. They dive deep into topics like MCAS (Mast Cell Activation Syndrome), gut health, hydration, blood sugar regulation, and the role of nutrients in managing symptoms of hypermobility. Savita is an accredited dietitian based in Australia. She shares her own experience with hypermobile Ehlers Danlos syndrome and emphasizes the importance of focusing on the basics: regular balanced meals, hydration, controlling blood sugar, and nervous system regulation in improving quality of life for those with hypermobility syndromes. She also sheds light on considerations such as the role specific nutritional deficiencies can play, and how gut health interacts with MCAS and POTS in hypermobility syndromes. Highlights of this episode include: Savita's Personal Journey with Hypermobility Savita's Professional Experience with Hypermobility Clients Discussion on Yoga and Hypermobility Understanding Gastrointestinal Issues in Hypermobility Syndromes The role TMJ dysfunction plays in nutrition The importance of meeting basic nutritional needs before trying to eliminate certain foods Addressing Micronutrient Deficiencies Importance of Regular Balanced Meals Managing Mast Cell Activation Syndrome (MCAS) The Role of Liver in MCAS Final Thoughts and Conclusion…
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Zebra Talks: Living Your Best Bendy Life
In the episode, host Dr. Libby Hinsley discusses the intersection of neurodivergence and hypermobility with guest Iris Warchall, a physical therapist and an autistic self-advocate. They delve into the importance of recognizing the diversity of neurocognitive functioning styles in healthcare settings. Iris shares her insight into how she became aware of her own neurodivergence and how this has influenced her approach toward treating her patients. She highlights the importance of accommodating the diverse needs of neurodivergent patients and presents some strategies to improve communication and caregiving in the therapeutic space. The conversation also addresses misconceptions and stigmas concerning autism, ADHD, and hypermobility. Highlights of this episode include: Iris's Personal Journey with Hypermobility and Neurodivergence Understanding Autism and Neurodivergence The Connection Between Neurodivergence and Hypermobility The Importance of Neurodiversity Affirming Practice Understanding Neurodivergence Terminology Exploring the Overlap Between Neurodivergence and Hypermobility Best Practices for Working with Neurodivergent and Hypermobile Patients Final Thoughts and Resources…
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Zebra Talks: Living Your Best Bendy Life
1 Strength Training for Hypermobility: A Conversation with Trina Altman 48:56
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48:56The episode of Zebra Talks features a conversation with Trina Altman, an experienced yoga and pilates practitioner and teacher with training in modern movement science. Trina speaks about her own experiences with hypermobility and the benefits of strength training, addressing the misconceptions about this form of exercise and how it can benefit those living with hypermobility. She provides practical advice and examples of how to incorporate strength training into a wellness routine while addressing how to overcome potential challenges hypermobile people might face. Some highlights of this episode include: Trina's Early Life and Experience with Hypermobility Trina's Journey into Yoga and Pilates and eventually Strength Training Trina's Personal Life and Career Shifts Trina's Love for Yoga and Teaching Transitioning Clients into Weightlifting Challenges and Strategies in Training Hypermobile Clients Specific Training Techniques for Hypermobile Clients The Importance of Lifting Heavy for Bendy People Tracking Progress and Adjusting Workouts The Role of Perceived Exertion in Training Overcoming the Fear of Strength Training The Role of Load in Strength Training The Transition from Stability Training to Strength Training The Benefits of Strength Training for Hypermobility The Journey to Single Leg Transitions The Importance of Functional Movements in Training The Impact of Strength Training on Daily Life Final Words of Encouragement and Tips for Bendy People The Potential of Plyometric Training…
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Zebra Talks: Living Your Best Bendy Life
1 Navigating Invisible and Dynamic Disability 50:09
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50:09In this episode of Zebra Talks, I get to chat with Jess Gregory, an Australian disability advocate living with hEDS. Through her work through Delicate Little Petal, Jess gives voice to those living with chronic health conditions such as hEDS that aren't well understood by the medical community. In this conversation, she shares insights about the unique challenges of navigating life with an invisible and dynamic disability. Some highlights of this episode include: Jess’s personal experience with hypermobility and advocacy work through Delicate Little Petal Unique challenges of having an invisible and dynamic disability The stigma many experience around using mobility aids Risk of burnout when managing a chronic health condition Why self care must be tailored to each individual’s unique situation How to resume your exercise routine after a flare up or illness Reasons bendy people love to stretch The movement and physical therapy approaches that have been most helpful for Jess Why manual therapy techniques can be so important for bendy people Our shared appreciation of dry needling as a manual therapy technique How our habit of pushing harder gets in the way of sustainable self care practices The importance of cultivating safety and agency for hypermobile patients Key characteristics of practitioners who cultivate a positive experience for bendy people The importance of allowing space for grief as you navigate life in a bendy body…
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Zebra Talks: Living Your Best Bendy Life
In this week's episode of Zebra Talks, we will get into the "itchy" part of the terrible trifecta that so often impacts people with hypermobility syndromes. Lisa Sherman is back to take us on a deep dive into the world of mast cells: what they are, what they do, and why so many bendy people struggle with the multi-system affects of some seriously unruly mast cells. Some highlights of this episode include: Understanding mast cells and their role in the immune system Clarity on what mast cell activation syndrome (MCAS) is and is not Some theories on why so many bendy people have MCAS Common signs and symptoms of MCAS Why MCAS can be difficult to identify The diagnostic process and criteria for MCAS How MCAS interacts with the other pieces of the "terrible trifecta" Ways you can manage your "histamine bucket" and keep it emptying efficiently Why we should all focus first on the four basic pillars of health Common supplements that can support people with MCAS (always ask your doctor first!)…
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Zebra Talks: Living Your Best Bendy Life
1 Bendy Bodies Need a Unique Approach to Exercise 33:21
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33:21For this episode of Zebra Talks, I got to chat with Jeannie DiBon about the unique needs of the bendy body when it comes to exercise. Jeannie's contributions to the hypermobility community have been huge for me and many other bendy people the world over, so we are fortunate to have her with us on Zebra Talks! Some highlights of this episode include: Jeannie's personal story about managing life with hEDS and regaining health after a low point The central role that meditation and daily rest have played in Jeannie's self care Insight into some of the key principles of Jeannie's Integral Movement Method The importance of starting any movement practice by cultivating a sense of safety How pain science informed Jeannie's to working with hypermobile clients The challenge of not having a whole lot of evidence on "best practices" for hypermobile exercise The importance of working towards heavier loading of tissues at the right time Why the standard approach to exercise doesn't usually work for bendy people Tips on avoiding the common "boom and bust" exercise cycle Why Jeannie is hopeful about the future of research into hypermobility syndromes…
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Zebra Talks: Living Your Best Bendy Life
1 The Genetic Mystery of Hypermobile EDS 32:16
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32:16In this episode, Libby talks with Victoria Daylor from the Norris Lab at the Medical University of South Carolina, where she and a team of researchers have identified candidate genes that may explain many cases of hypermobile EDS. Since their research is currently in the peer review process, Victoria can’t spill the beans. But she sheds light on what we know about the various subtypes of EDS and why this one has been so tough to nail down. Some highlights of this episode include: The prevalence of the various subtypes of EDS What we understand about the genetic basis for all EDS subtypes except hypermobile EDS Why you can’t just get a genetic blood test to diagnose hEDS How the Norris lab is developing research models to help understand hEDS and HSD The process that has led to discovering some potential genetic variants to explain hEDS What the scientific peer review process looks like and why it takes so long What a day in lab life is like for Victoria The summer internship program at the Norris Lab Some other research projects happening at the Norris Lab including one related to tethered cord syndrome A questionnaire-based research project for anyone with an EDS or HSD diagnosis currently underway A discussion about the differences and similarities between hEDS and HSD The wide variety of symptom presentation among people with hEDS and HSD How increased diagnosis rates can drive improvements in resource allocation for research…
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Zebra Talks: Living Your Best Bendy Life
1 Journey to Diagnosis with Lisa Sherman 57:03
57:03
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57:03In this episode, Libby talks with Lisa Sherman about the long journey to diagnosis that many people with HSD/hEDS undertake. They explore barriers to diagnosis, the pros and cons of diagnosis, why the medical system hasn’t done a great job identifying and treating this patient population, and how things might be changing. Some key points discussed in this episode: How Lisa began her journey of specializing in the treatment of people with hypermobility syndromes How Libby and Lisa started collaborating through their personal and professional overlaps How common hypermobility syndromes are currently diagnosed The nature of the HSD/hEDS “spectrum” as a spectrum of variety, in addition to severity The history and limitations of the Beighton Scale as an assessment for generalized hypermobility The imperfect nature of current diagnostic criteria and how the diagnostic landscape is evolving Why HSD/hEDS present a confusing clinical picture for many medical practitioners Some systemic barriers within the medical system that prevent early diagnosis and treatment for this patient population The unfortunate experience of medical gaslighting A silver lining of the covid crisis for people with complex chronic conditions What it’s like wandering in the wasteland of non-diagnosis Why medical appointments are often so anxiety-provoking for bendy people The validation and empowered action that can stem from diagnosis How having a clear diagnosis can help reduce anxiety and support nervous system regulation The overwhelm that can stem from diagnosis How a good working hypothesis can be just as good as a diagnosis for some people How focusing on the basic pillars of overall health is always a good place to start -- appropriate movement, nervous system regulation, nutrition, and sleep.…
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Zebra Talks: Living Your Best Bendy Life
Connective tissue or fascia plays a major role in the differences between bendy people and their non-bendy counterparts. But what even is fascia and why does it affect so many systems of the body? In this episode, Libby & Dr. Tina Wang discuss her fascinating research into the qualities of fascial tissue in people with hypermobility syndromes. She provides insights into why bendy people’s fascial tissue is different from “standard issue” fascia, how this impacts force transfer and structural support, and finally, why bendy people benefit so much from manual therapy techniques. The important structural and sensory roles fascia plays in the body Why the term 'fascia' is difficult to define Why bendy people display decreased force output and how that relates to fascia differences Why bendy people’s fascial layers don’t glide as well as standard issue fascia The “diagnostic odyssey” that so many bendy people experience Systemic barriers to high quality medical care for people with HSD/hEDS How movement practices to help our fascia make positive adaptations and function better Why manual therapy techniques such as dry needling and myofascial release are often so effective for people with HSD/hEDS. Reasons to be hopeful about all the patient experts and practitioners working to improve quality of care.…
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Zebra Talks: Living Your Best Bendy Life
Ever been told that hypermobile people shouldn’t practice yoga? In this episode Libby shares how different ways to practice yoga can be helpful or harmful for bendy people. Episode highlights include: Hypermobility basics – what does it actually mean to be bendy? Unique needs for bendy people in Asana practice Alternatives to passive stretching that work better for bendy people What yoga practice injuries are telling us An overview of Libby’s book; Yoga for Bendy People ----- Purchase Libby's book: Yoga for Bendy People Sign up for free hypermobility-friendly movement practices.…
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Zebra Talks: Living Your Best Bendy Life
1 Jill Miller On Nervous System Regulation for Bendy People 57:04
57:04
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57:04Hypermobility syndromes often include an extremely sensitive nervous system. This makes nervous system regulation an essential skillset for bendy people. Jill Miller is a pioneer in forging relevant links between the worlds of fitness, yoga, athletics, massage, and pain management. In this episode, Jill describes specific practices that can help people with hypermobility learn to regulate their nervous systems. Here are some highlights of the episode: Jill’s personal experience with hypermobility Why learning to feel and identify body sensations is such a key skillset for bendy people. How self-massage can help you explore sensation and learn about your inner emotional experience Breathing mechanics for nervous system regulation Exploration of the three zones of respiration Why breathing dysfunction can contribute to neck and shoulder pain, thoracic outlet, carpal tunnel and other complaints Why resting can sometimes feel uncomfortable for bendy people The 5 P’s of the parasympathetic nervous system and how to work with them. The Hypermobility Hub Waitlist Yoga Tune Up…
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Zebra Talks: Living Your Best Bendy Life
Zebra talks is a podcast dedicated to helping you live your best bendy life. Join host Dr Libby Hinsley and guest experts for in-depth conversations about hypermobility syndromes.
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