Player FM - Internet Radio Done Right
Checked 2d ago
Ajouté il y a quatre ans
Innehåll tillhandahållet av Remember Me Podcast. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Remember Me Podcast eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Player FM - Podcast-app
Gå offline med appen Player FM !
Gå offline med appen Player FM !
Podcaster värda att lyssna på
SPONSRAD
A
All About Change
31:05
Spela Senare
Spela Senare
Listor
Gilla
Gillad
31:05Vicki Sokolik refuses to be an Ostrich. Her son brought to her attention the crisis of unhoused youth — youth unhoused, not living with a parent/guardian, and not in foster care — in America, and she has been fighting to support this vulnerable population every since. Most active in Tampa Bay, Florida, Vicki is the founder and CEO of the nonprofit Starting Right, Now, which removes barriers for unaccompanied homeless youth to cultivate long-term well-being and self-sufficiency. She is also the author of the new book, “If You See Them: Young, Unhoused, and Alone in America.” Vicki Sokolik joined host Jay Ruderman to discuss the many ways unhoused youth fall through the cracks in our society, how her organization helps them, and also how to build trust with people who could use your help. Episode Chapters (00:00) Intro (01:10) Vicki’s origin story (02:40) What is “unhoused youth?” (06:40) What should a person do if they worry they see an unhoused youth? (08:19) How have conversations around unhoused youth changed in Vicki’s 20 years working with them? (11:02) How do people get the word out and help unhoused youth? (14:55) Vicki’s new book (16:48) How Vicki builds trust (20:10) What do students receive at Starting Right, Now? (22:58) How does Vicki balance advocacy and direct support? (27:53) Starting Right, Now alumni (29:10) Goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/…
Remember Me
Markera alla som (o)spelade ...
Manage series 2953326
Innehåll tillhandahållet av Remember Me Podcast. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Remember Me Podcast eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com
…
continue reading
141 episoder
Markera alla som (o)spelade ...
Manage series 2953326
Innehåll tillhandahållet av Remember Me Podcast. Allt poddinnehåll inklusive avsnitt, grafik och podcastbeskrivningar laddas upp och tillhandahålls direkt av Remember Me Podcast eller deras podcastplattformspartner. Om du tror att någon använder ditt upphovsrättsskyddade verk utan din tillåtelse kan du följa processen som beskrivs här https://sv.player.fm/legal.
Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Follow us on Instagram @remembermepodcast. Visit our website www.remembermeftd.com
…
continue reading
141 episoder
Alla avsnitt
×1 BONUS | A Conversation on Grief with the AFTD 1:09:05
1:09:05
Spela Senare
Spela Senare
Listor
Gilla
Gillad
1:09:05Surprise! We're back with a Season 9 Bonus Episode, and if you are so inclined, you can now WATCH this episode on Youtube . We sat down with our friends Esther Kane, MSN, RN-CDP, Support & Education Director and Sarah Lopata, Support Services Manager at the Association for Frontotemporal Degeneration to discuss the unique grief experience of FTD and many of its layers. Let us know on instagram what you think of this episode + the topics covered. Please share this episode with someone you think needs to hear it! SPECIAL THANK YOU TO THIS EPISODE SPONSOR The Association for Frontotemporal Degeneration Check out their grief resource, Walking with Grief: Loss and the FTD Journey here.…
In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so inspiring, we hope it fills you with hope and comfort as you navigate the holidays. ------- An extended version of this amazing episode is available now on our Re-Members only Patreon . A special thank you to all of our guests, sponsors + listeners this season. We are so deeply thankful + grateful for you. Hope this season you can find some time to #acceptthegood. We are here for you. xx - R+M ------ Please check out some of our amazing sponsors: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
1 The Phenomenon of Grief with Rachael Martinez, MA, Grief Support Specialist 50:57
50:57
Spela Senare
Spela Senare
Listor
Gilla
Gillad
50:57Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet* We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram . Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future. Make sure you listen t o Part 1 first! Thank you Kayla for sharing your story. --- *Trigger warning: This episode discusses physical and verbal abuse. Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why. Kayla recounts and her 20 year experience witnessing her mom Diana's dramatic FTD journey -- starting from when she was just 8 years old. This is such an important episode and we hope it gets to the people who need to hear it. Stay tuned for part 2 dropping later this week. Thank you, Kayla for sharing your story. *Trigger warning: This episode discusses physical and verbal abuse. Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and we felt so honored to hold space for her and her dad, David. We hope this episode of love and resilience helps carry you through Thanksgiving week. Take good care. Please send this episode to someone you think needs to hear it. Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdiagnosis of adult onset ADHD to the final diagnosis of FTD was a long, long journey. But Allyson's love for Evan shines throughout. This is a very special episode that is so raw and honest about the awfulness of this disease..but also such a beautiful example of love and commitment. We hope this episode finds someone who needs to hear it! Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with FTD - and because we know Aisha, we felt like we were able to dive deep into all the things we wish people knew about our grief journeys. Thank you Aisha for sharing your story with us! We hope this episode reaches someone who needs to hear it, so please share with a friend! Please check out the amazing sponsors mentioned in this episode: PROGRANULIN INFORMATION NAVIGATOR A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with grief, how it manifests for her - and how she keeps herself tethered to the memory of who he was before FTD. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: www.remembermeftd.com | @remembermepodcast Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
1 End of Life Myths and Mysteries with Katie Duncan, MSN, AGPCNP-BC @deathcarecoach 53:18
53:18
Spela Senare
Spela Senare
Listor
Gilla
Gillad
53:18This week we have an amazing expert guest - Katie Duncan - a former Hospice Nurse turned End of Life Coach who answers all of our (mostly Rachael’s) burning questions about the dying process. We cover so much - from the death rattle to the death “rally” - thoughts on morphine and more. All in an effort to normalize the conversations on end of life and hopefully help people feel they are not alone on this journey. A very special thank you to Katie for lending her expertise for our community. You can find all of Katie’s amazing resources here: https://www.deathcarecoach.com Her Instagram: https://www.instagram.com/death.care.coach Her TikTok: https://www.tiktok.com/@death.care.coach Her Book: https://www.amazon.com/dp/B09GTJRQPH Please share this episode with someone you think may need to hear it! And for all things remember me, check out www.remembermeftd.com or follow us on IG @remembermepodcast ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help others. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: www.remembermeftd.com | @remembermepodcast Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy recently authored a book with reknown FTD expert Dr. Bruce Miller called Finding the Right Words , which chronicals her father's disease but also focuses on remembering Jerry for who he was before the diesase (you know we love that!). We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: www.remembermeftd.com | @remembermepodcast Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships . Speaking of... Check out our friends at Wake Up Maggie Film . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
1 Anticipatory Grief: Victoria's Story 46:06
46:06
Spela Senare
Spela Senare
Listor
Gilla
Gillad
46:06Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away. Please share this episode with someone you think needs to hear it. --- All things Remember Me Community + Advocacy: www.remembermeftd.com | @remembermepodcast Holding Space Course Begins 10/7: Register here . Check out our friends at Wake Up Maggie Film . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week. --- All things Remember Me Community + Advocacy: www.remembermeftd.com | @remembermepodcast Holding Space Course Begins 10/7: Register here . Check out our friends at Wake Up Maggie Film . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 On The Road with HFC | Reflections On The Caregiving Journey 26:33
26:33
Spela Senare
Spela Senare
Listor
Gilla
Gillad
26:33We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap here . And don't forget to follow us @remembermepodcast and @wearehfc on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. For all things RM: www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music 41:54
41:54
Spela Senare
Spela Senare
Listor
Gilla
Gillad
41:54We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us @remembermepodcast and @wearehfc on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap here . Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen 32:29
32:29
Spela Senare
Spela Senare
Listor
Gilla
Gillad
32:29A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of HFC alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please share + DON'T FORGET to follow us @remembermepodcast and @wearehfc on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap here . Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 On The Road with HFC | A Little Summer Adventure 47:31
47:31
Spela Senare
Spela Senare
Listor
Gilla
Gillad
47:31Surprise! Here to share all about being on the road with HFC AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned for some more bonus episodes from our trip. BUT DON'T FORGET to follow us @remembermepodcast and @wearehfc on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap here . Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo 35:36
35:36
Spela Senare
Spela Senare
Listor
Gilla
Gillad
35:36Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs. not? -How does brain donation support research? -How do we make research more accessible? Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read here full of more resources and info. -- We want to send big love to the entire Penn FTD Center Team . To sign up for our e-mail visit our website remembermeftd.com . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center 58:03
58:03
Spela Senare
Spela Senare
Listor
Gilla
Gillad
58:03Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center. Some of the questions we ask: -What is a clinical trial? -What do the different phases mean? -What are the considerations for families? Benefit vs. Burden Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read here full of more resources and info. -- We want to send big love to the entire Penn FTD Center Team . Want to support the podcast? Want more content + connection? Join us on Patreon in Re-Members Only . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Season Finale: In Conclusion...with Rachael + Maria 53:21
53:21
Spela Senare
Spela Senare
Listor
Gilla
Gillad
53:21In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end. And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two... Thank you all for your support and love. Sincerely, R+M -- We want to thank the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. For more support, resources, events, and all things RM, check out our website www.remembermeftd.com Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Understanding Guardianship, Power of Attorney + More with Kate Lietz, MSW, LSW 55:39
55:39
Spela Senare
Spela Senare
Listor
Gilla
Gillad
55:39This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center. But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark. We recorded this interview last fall, and in February, Mark passed away after a very long journey with FTD. We want to take a minute to acknowledge Keri for the amazing job she did caring for her dad...all while being a wife, raising her little kids and being a fierce FTD advocate. You're a superhero, Keri. -- We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Disease Trajectory with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center 37:38
37:38
Spela Senare
Spela Senare
Listor
Gilla
Gillad
37:38Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy). Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions. And this week's personal stories come from our friends Lauren and Michelle from the Sister Project . Hear their stories told on Season 1 episodes "June" and "June Pt. 2. This episode is dedicated to June. xx -- We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with LearnFTD , by Alector in working to raise awareness of FTD.. For additional information and resources, visit LearnFTD.com Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Understanding Hyperorality and Alcohol Use with Dr. Sara Manning, Penn FTD Center 40:43
40:43
Spela Senare
Spela Senare
Listor
Gilla
Gillad
40:43This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse). Have a listen as the story meets the science with the lovely Dr. Sara Manning. We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Understanding Loss of Empathy with Dr. Emma Rhodes 44:30
44:30
Spela Senare
Spela Senare
Listor
Gilla
Gillad
44:30This week we dive into loss of empathy with Dr. Emma Rhodes. We discuss how this behavior so often reveals itself with birth and death announcements and the episode is filled with personal stories from Rachael, Maria and their friends Lauren and Michelle from the Sister Project (Season 1 - June Pt. 1 & Pt. 2). We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Understanding FTD and ALS with Corey McMillan, Phd, Co-Director of the Penn FTD Center 37:29
37:29
Spela Senare
Spela Senare
Listor
Gilla
Gillad
37:29WE'RE BACK! With a very important interview with the brilliant Corey McMillan, Co-Director of the Penn FTD Center. This week we tackle ALS and FTD - the science behind the connection of the diseases, and the work that is being done to understand more. We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . Thank you for supporting our work and for supporting the FTD community. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Disinhibition, Impulse Control & Hypersexuality with Dr. Katya Rascovsky, Penn FTD Center 45:52
45:52
Spela Senare
Spela Senare
Listor
Gilla
Gillad
45:52In our last episode before our mid-season break, we talk to the incredible Dr. Katya Rascovsky about some of the most heartbreaking behaviors in FTD: disinhibition, impulse control and hypersexuality. Katya is absolutely brilliant, kind, and we learned so much from her. We'll see you back here on March 5th, when we'll start to dive into the second half of Season 8. Take time to digest the first 6 episodes of our season with care. Read the blogs for more info. We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Understanding Primary Progressive Aphasia with Naomi Nevler, MD 49:34
49:34
Spela Senare
Spela Senare
Listor
Gilla
Gillad
49:34This week we dive into more of Maria's experience with her mom as we discuss Primary Progressive Aphasia (PPA) with Naomi Nevler, MD from the Penn FTD Center. We had the chance to spend time with Naomi on our visit to Penn last fall, and her passion for science and her understanding and compassion for our community, we feel, is all felt through the episode. We hope this helps you gain deeper insight into PPA... and we hope you appreciate some raw and unfiltered thoughts on the subject from your favorite duo. We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
R
Remember Me
1 Ritualistic Behaviors with Gillian Bradley MA, BSN, RN, Penn FTD Center 40:11
40:11
Spela Senare
Spela Senare
Listor
Gilla
Gillad
40:11This week we tackle ritualistic behaviors with Gillian Bradley MA, BSN, RN from the Penn FTD Center. Gillian works with caregivers and families to understand ritualistic and compulsive behaviors and come up with strategies for managing them. Ritualistic behaviors can include things like constant pacing, repeating the same phrases, eating the same foods, walking the same routes, and more... and Gillian helps us to understand a little bit more about the patterns of behavior and how it relates to what is happening in the brain as well as shares some learnings from families in clinic. We want to send big love to the entire Penn FTD Center Team for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories. Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website remembermeftd.com . The companion blog to this episode can be read here . ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM , join us over on PATREON , visit our website www.remembermeftd.com or follow us on Instagram!…
Välkommen till Player FM
Player FM scannar webben för högkvalitativa podcasts för dig att njuta av nu direkt. Den är den bästa podcast-appen och den fungerar med Android, Iphone och webben. Bli medlem för att synka prenumerationer mellan enheter.