Bästa Breathe In A Cystic Fibrosis Podcast podcaster (2024)

1
S6 Ep116: Hemolytic Uremic Syndrome 55:18

1d ago55:18

55:18

In this episode, pediatric nephrologist Dr. Myda Khalid (Indiana) teaches us about hemolytic uremic syndrome. Join us as we learn about the clinical manifestations of HUS, different methods for stool testing, and the role of interventions including fluids, transfusions, and renal replacement therapy.…

1
In conversation with... James Hull 11:04

7d ago11:04

11:04

Professor James Hull joins us to discuss his recent Spotlight on protecting the respiratory health of athletes ahead of the Summer Olympics and Paralympics.Av The Lancet

1
S6 Ep115: Pneumonia, Cystic Fibrosis & Obstructive Sleep Apnea: Rapid Review (FFTC) 41:47

9d ago41:47

41:47

Recap and review the top pearls from episodes #1 (AND #100) Cystic Fibrosis, #11 Pneumonia, and #104 Obstructive Sleep Apnea with a few members of our production team! It’s Fables from the Cribside! (FFTC), our series providing a rapid review of recent Cribsiders episodes for your spaced learning.Av The Cribsiders

1
Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

11d ago27:26

27:26

Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…

1
S6 Ep114: Cerebral Sinus Venous Thrombosis - A Deep Conversation About Thrombosis in the Brain 1:02:57

16d ago1:02:57

1:02:57

A cerebral sinus venous thrombosis (CSVT) is a blood clot in the venous system of the brain that can result in headache, emesis, double vision, and even coma. Listen to this episode to hear more from Dr. Lauren Beslow about the key risk factors for CSVT, important findings on physical exam that suggest CSVT, and the best imaging to diagnose a CSVT …

1
Special Insurance for CF families (and others) in MI 33:29

18d ago33:29

33:29

Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…

1
S6 Ep113: In Too Deep - Water Safety and Drowning 52:28

30d ago52:28

52:28

Grab your goggles and U.S. Coast Guard approved life jacket as we plunge deep into another great episode! Our special guest, Dr. Mercedes Blackstone, a pediatric emergency medicine physician, makes a SPLASH in this episode on water safety, prevention of drowning, and management of the child who drowned. We learn who’s at risk for drowning, what hap…

1
Remembering Matt McCloskey of Take a Breather 37:29

1M ago37:29

37:29

Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…

1
S5 Ep112: The Re(n)al Truth Behind Proteinuria 1:07:04

1M ago1:07:04

1:07:04

U-r-ine for another urine episode, this time on proteinuria! We join the Kidney Chronicles Podcast, hosted by Drs. Emily Zangla and Annie Kouri, to discuss all scenarios proteinuria. They teach us about proteinuria in CKD, proteinuria in UTI, nephrotic range proteinuria, and why we should be ordering the urine protein to creatinine ratio!…

1
The Fearless Vagina: Ellen Dolgen 1:00:06

2M ago1:00:06

1:00:06

As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …

1
Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

2M ago43:39

43:39

Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …

1
S5 Ep111: Why Can’t Your Patient Breathe? An Exam-Driven Approach to Pediatric Respiratory Failure 57:04

2M ago57:04

57:04

Respiratory failure is one of the scariest presentations in the clinic, ED, and hospital. How do you generate a differential and plan for the child who cannot breath? Pulmonologists Dr. Powell and Dr. Wyatt describe how we can use our physical exam and an anatomic approach as a framework for diagnosis and initial management of respiratory failure i…

1
Cambrey Vasconez White - rare mutations 38:33

2M ago38:33

38:33

Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you’ll hear, because their sons share the same mutation. Row…

1
Brandi Berry, Chidlren's Special Health Care Services Prgrm 39:34

2M ago39:34

39:34

Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about it. Brandi Berry, LLMSW is the Program Coordinator of t…

1
S5 Ep110: Don’t Sugarcoat It - Pediatric Type 2 Diabetes 1:08:41

2M ago1:08:41

1:08:41

Grab your Metformin and settle in for a sweet conversation as we chat with Dr. Nancy Crimmins, Pediatric Endocrinologist at Cincinnati Children’s Hospital. Dr. Crimmins tells us about when to screen for type 2 diabetes, how to diagnose and our go-to treatment options. She won’t sugarcoat it!Av The Cribsiders

1
Dr. Bhanu Jena, another CF modulator on the horizon? 35:36

2M ago35:36

35:36

A new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine from his father and grandfather. He majored in Chemistry, Zoology, and Botany at BJB College in Bhubaneswar, Odisha, India, He got his masters in zoolo…

1
The Final 10 percent 38:03

3M ago38:03

38:03

Approximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common CF mutations. Emily Kramer Golinkoff is one of the people who doesn't have a CF modulator that will help her. Her Foundation, Emily's Entourage, is a l…

1
In conversation with... Eric Lim 6:17

3M ago6:17

6:17

Professor Eric Lim discusses the outcomes after extended pleurectomy decortication plus chemotherapy versus chemotherapy alone for pleural mesothelioma.Av The Lancet

1
S5 Ep109: Cold Chill-dren! What to do with the Hypothermic Infant 51:35

3M ago51:35

51:35

All is not frost, we’re back to talk through the Hypothermic Infant with Dr. Sriram Ramgopal (Pediatric Emergency Medicine, Lurie Children’s Hospital). How do we know if the baby is septic or is just two blankets short of euthermia? Dr. Ramgopal walks us through the latest research, a differential diagnosis, who needs an infectious workup, and how …

1
Dr. Mitch Drumm - CF Pioneer (and hero to CF community) 44:14

3M ago44:14

44:14

Living legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the connection Laura and Mitch have, and they didn’t know it until this podcast! Dr. Drumm is a living CF hero. Dr. Drumm earned his doctoral degree while in…

1
Dr Ryan Hadley - Lung Transplants 27:38

3M ago27:38

27:38

Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a lot you may not know. We welcome Dr. Ryan Hadley. Dr. Hadley is at Corewell health in Grand Rapids. He is an assistant Profession of Medicine in pulmon…

1
In conversation with... Anne Chang 9:49

3M ago9:49

9:49

Dr Anne Chang discusses the burden of chronic respiratory diseases in Indigenous people.Av The Lancet

1
S5 Ep108: Restrictive Eating Disorders - From Assessment to Recovery 1:12:04

3M ago1:12:04

1:12:04

Eating disorders are among the most challenging and consequential mental health diagnoses in pediatric medicine. Join us and Dr. Abigail Donaldson, Medical Director of the Eating Disorders Program at Hasbro Children’s Hospital, as we tackle the complexities of anorexia nervosa and other restrictive eating disorders from a clinical perspective. Tune…

1
Laura and Beth talk about what makes a Foundation work! 40:50

3M ago40:50

40:50

Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation. Please join me with my friend Beth Vanstone who asks me all sorts of questions about what running a Foundation is all about! Please follow us on social media! Please cons…

1
Rabbi Moskowitz, embracing the Queer community 58:41

4M ago58:41

58:41

He’s been arrested. He’s CIS gender with a wife and kids. Rabbi Mike Moskowitz is also an orthodox Jew’is and he is one of the biggest supporters of the queer community. Rabbi Moskowitz is the Scholar-in-Residence for Trans and Queer Jewish Studies at Congregation Beit Simchat Torah, the world’s largest LGBT synagogue. He is a deeply traditional an…

1
S5 Ep107: Burning Up! Caring for Pediatric Burn Patients 1:05:28

4M ago1:05:28

1:05:28

Extinguish any fears you have about pediatric burns with our great guest, Dr. Tam Pham. Dr. Pham is a board-certified surgeon and Director of the University of Washington Medicine Regional Burn Center and a Professor of surgery at UW. In our episode we cover: burn classification and triage, first aid of burns, and care for burns in different clinic…

1
CF in Brazil, and one outstanding advocate 57:39

4M ago57:39

57:39

We’re going to Brazil for this podcast. Brazil is famous for some soccer players; you remember Pele and others. It’s the largest country in South America, it has 4 times zones…60 percent of the amazon rainforest is in Brazil, their flag has 27 stars on it and they speak Portuguese there. And the food looks amazing there. I have never been to Brazil…

1
Gut pain and CF, Dr. Jorge Machicado 23:46

4M ago23:46

23:46

So many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and others without. Dr. Machicado is a Clinical Assistant Professor in the Division of Gastroenterology and Hepatology at the University of Michigan. Dr. Mach…

1
S5 Ep106: Parenting for the Pediatrician Part 2: Discipline and Limit Setting 1:00:01

4M ago1:00:01

1:00:01

Unlock prescriptions for parenting success in this episode as we delve into tips to address behavior concerns! Join us and expert guest Dr. Nakiya Showell (@NShowell) as we discuss unique challenges and opportunities for addressing everything from the 'terrible twos' to teenage tumult. Tune in to learn parenting pearls tailored for the pediatric pr…

1
Win Like A Girl - Maureen Electa Monte 49:45

4M ago49:45

49:45

Maureen Electa Monte and I go ... way back! When she was an engineer, and doing photography, she photographed our first Portraits of cystic fibrosis black and white calendar in 2003. The wives of the Detroit Tigers, pretty much all of them pregnant, played in our first celebrity softball game. They played against law enforcement at a ballpark in St…

1
S5: Call for Producers! 0:59

4M ago0:59

0:59

Would you like to be a part of The Cribsiders? We’d love to have you! As we’re expanding, we’re looking to add to our production team. If you’re interested, please write to us at thecribsiders@gmail.com with a paragraph detailing why you would like to be on the show and a pilot script. The script should be a clinical vignette with approximately 10 …

1
Mindfullness and CF with Aliyah Novelli 30:52

5M ago30:52

30:52

Aliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she's a licensed social worker practicing as a child and family therapist at The Center for Change and Growth in Ardmore, PA. Aliyah is full of enthusiasm about her new program: mindfulness. The CF Foundation awarded her with a CF Impact grant to get it started. Aliyah launched …

1
S5 Ep105: Reflux, Celiac, & Constipation: Rapid Review (Fables from the Cribside!) 40:31

5M ago40:31

40:31

Recap and review the top pearls from episodes #66 Constipation, #75 Reflux, & #89 Celiac with a few members of our production team! It’s Fables from the Cribside! (FFTC), our series providing a rapid review of recent Cribsiders episodes for your spaced learning.Av The Cribsiders

1
In conversation with... Daniel Steinfort and Shankar Siva 10:23

5M ago10:23

10:23

Professor Daniel Steinfort and Professor Shankar Siva discuss the effect of systematic endoscopic mediastinal staging on radiotherapy field planning in patients with locally advanced non-small-cell lung cancer.Av The Lancet

1
CF Mom Vicky Maldonado talks Ultra Rare CF mutations 38:14

5M ago38:14

38:14

Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with two rare CF genes after repeated respiratory infections and two hospitalizations. “We were told that Sebastian likely didn’t have CF because he’s “not…

1
All of Us - Science, Innovation and YOU. 39:20

5M ago39:20

39:20

A better future for health for: All of Us! Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health. The Bonnell Foundation is all about Science and Innovation! And he has a CF connect via his father! The goal of All of Us is to enroll 1 million people to build one of the most diverse health …

1
S5 Ep104: Snoring is Never Boring: Pediatric Obstructive Sleep Apnea 1:07:35

5M ago1:07:35

1:07:35

You won’t want to sleep through this eye opening review of Pediatric Obstructive Sleep Apnea with our guest, Dr. Ignacio Tapia. He is the Chief of the Division of Pediatric Pulmonology and Batchelor professor of Cystic Fibrosis and Pediatric Pulmonology at the University of Miami.He is board certified in General Pediatrics, Pediatric Pulmonology an…

1
CF Trust, U.K. with Belinda Cupid 40:23

5M ago40:23

40:23

(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you) Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things. Today we’re going to tell you about the CF Trust in the United Kingdom. Belinda Cupid is the Senior Impact Advis…

1
Healthwell again open to CF patients 19:48

5M ago19:48

19:48

This is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped helping existing patients and couldn’t help new applicatns with their CF bills. Healthwell …

1
S5 Ep103: Tick-Talk: A Deet-ailed Look at Tick-Borne Illnesses. 56:27

6M ago56:27

56:27

Dr. Buddy Creech of Vanderbilt teaches us the core signs and symptoms of tick-borne illnesses, the importance of geographic variation in making a diagnosis, why doxycycline is the drug of choice for treatment, and not just what but also why we see lab abnormalities in Ehrlichiosis.Av The Cribsiders

1
The extraordinary, Nick Kelly. 44:20

6M ago44:20

44:20

(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you) What a treat for all of us today. Nicholas Kelly is in the house. I've wanted him on our podcast for a while. Nick was diagnosed with CF when he was 3 months old. Nick has so many accomplishments. He earned a bachelor’s and master’s degree from Bowling…

1
Karen McEwan and Laura bond over chronic illness 45:59

6M ago45:59

45:59

Karen McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the first podcast that is not about cystic fibrosis specifically, although you will see the connection. It’s about chronic illness and Mom’s connecting and pa…

1
S5 Ep102: RSV Immunizations 53:10

6M ago53:10

53:10

The Curbsiders and Cribsiders are back with a very special Med-Peds collaboration on RSV immunizations! Dr. Buddy Creech, Pediatric Infectious Disease at Vanderbilt, walks us through these breakthrough “vaccines" for both adults and kids. He teaches us about their mechanisms of action, eligibility criteria, and why it’s been so challenging to find …

1
Two Salty Okes, Rena Barrow's story 40:39

6M ago40:39

40:39

Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color. Even after her 22 year old son was diagnosed, doctors weren't sure her newborn baby had CF, They told her, "Maybe it was sickle cell." She fought until her son Jahsir was properly diagnosed. The delay i…

1
Dr. Susanna McColley talks health equity 54:06

6M ago54:06

54:06

I am excited that all of you will get to meet Dr. Susanna McColley!!!! I was so impressed with her commitment to CF and her incredible medical and life knowledge. Dr. McColley works to promote equitable diagnosis and treatment in cystic fibrosis. As a white person, Dr. McColley talks about all that white privilege brings, and what we must remember …

1
S5 Ep101: Tiny Patients, Big Planet: Pediatric Prescriptions for a Changing Climate 53:56

7M ago53:56

53:56

Join us on this eye-opening episode as we explore the predicament of pediatric health in the face of a changing climate. From global changes to the impacts on tiny bodies, we'll delve into the health effects of climate change and opportunities to mitigate its impact. Get ready for a 'temperature checkup' on our planet and discover how we can create…

1
In conversation with... Daniel Prieto-Alhambra, Annika Jödicke, and Martí Català 8:16

7M ago8:16

8:16

Prof Daniel Prieto-Alhambra, Dr Annika Jödicke, and Dr Martí Català discuss the effectiveness of COVID-19 vaccines to prevent Long COVID, estimated to affect up to 20% of those infected with SARS-CoV-2.Av The Lancet

1
CF Woman climbs Kilimanjaro (Caroline Heffernan) 44:50

7M ago44:50

44:50

Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF. As someone with CF she knows what she’s talking about. She’ll even discuss End of Life with CF families. Caroline volunteers for CF Ireland. Caroline, is 53 years old, a…

1
Queen Kwong, AKA Carre Callaway -rock n roll and CF 50:49

7M ago50:49

50:49

Carre Callaway (Queen Kwong) tours in the U.S., U.K. and wherever her music takes her. Carre ended her tour and was in Los Angeles when we talked with her on this podcast. She talks about how music was a coping mechanism for her chaotic life. When Carre was 17 years old, a chance meeting with Trent Reznor of Nine Inch Nails, turned her life around.…

1
100: Cystic Fibrosis - Meet Elexacaftor, Tezacaftor, and Ivacaftor 1:11:50

8M ago1:11:50

1:11:50

Check out this milestone episode as we return to Cystic Fibrosis from a more pediatric perspective! Don’t sweat it as Dr. Ina St. Onge returns to walk us through newborn screening, early clinic visits, and the nuances of CFTR modulator therapy.Av The Cribsiders

Podcaster värda att lyssna på

Breathe In A Cystic Fibrosis Podcast

Podcaster värda att lyssna på

Snabbguide