Welcome. Hear how survivors met challenges and discovered blessings. Understand that you are not alone. Learn strategies for effective self-advocacy. Become more confident and comfortable with speaking up for your needs and understanding your cancer, survivorship issues, and plans of care. Become more comfortable having quality-of-life-changing discussions with those you love. Get practical tips for rekindling intimacy when cancer has changed your world. Get behind-the-scenes insights into c ...
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Dying Well, The Final Stage of Survivorship - Cancer Survival Toolbox®
National Coalition for Cancer Survivorship
Dying Well - The Final Stage of Survivorship is an informative, supportive, and reassuring program designed to teach you more about your choices and resources and what to expect during this last stage of survival.
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The Cancer Survival Toolbox is an award-winning series of audio programs developed by leading cancer organizations to help people develop important skills to meet the challenges of their illness. The audio programs address scenarios for many topics and issues cancer patients/survivors face during their cancer journey. The conversations touch on issues from how to communicate with your doctor, family and loved ones, to understanding complicated financial issues. Each scenario is inspired by t ...
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NCCS: National Coalition for Cancer Survivorship - Championing Survivors to Infinity and Beyond: An Interview with Dr. Veronika Panagiotou, PhD
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What really happens behind the scenes in the world of national policy and legislative cancer survivorship advocacy? Dr. Panagiotou pulls back the curtain and takes us on an enlightening tour of NCCS’s mission, shedding light on how they’re ensuring the voices of survivors shape the future of cancer care at the highest levels. She keeps the conversa…
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What an Integrative Oncology Survivorship Center Looks Like: Take a podcast tour with us and their awesome manager
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In episode 32 of Everything Cancer, we delve into the impactful work of Prisma Health Cancer Institute's Center for Integrative Oncology Survivorship and Center for Cancer Prevention and Wellness. Jason King, Assistant Manager at the Center, takes us on a tour, explaining how they’ve expanded over the past 11 years with the growing recognition of t…
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Unbreakable Spirit: Host of YouTube's 2BeYourOwnHero, Mark Kagayama's Story of Hope, Healing, and Quiet Determination in the Face of Stage IV Cancer
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In episode 31 of Everything Cancer, we sit down with the gracious and perseverant Mark Kagayama, inspiring host of the YouTube channel 2BYourOwnHero. Mark shares his incredible journey from being a health-conscious vegan to facing a life-altering diagnosis of stage IV cancer. He takes us on his odyssey with him, with his genuine and unique style of…
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Kintzugi—Finding Beauty in Brokenness: An Interview with Grief Therapist and Cancer Survivor, Harriet Cabelly
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Join us on this episode of Everything Cancer as we welcome the insightful and genuine Harriet Cabelly, a grief therapist, positive psychology coach, cancer thriver, speaker, and author. Harriet shares her profound journey from being a school social worker to her true calling in grief therapy. She candidly discusses her own experiences with grief, f…
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Lubricants 101: The Essential Guide to Lubricants for Cancer Survivors
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In this episode, we explore the benefits of lubricants for cancer survivors, focusing on how lubricants can enhance sexual pleasure, make penetration easier with decreased penile firmness, relieve vaginal dryness, reduce pain during penetration, and decrease performance anxiety. Avoid lubricants containing irritants such as chlorhexidine gluconate …
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Are You Curious About Integrative Health and Oncology Nutrition Counseling? Join us for a conversation with a retired surgical breast oncologist turned Certified Oncology Nutrition Counselor and Integrative ...
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Dr. Cynthia Aks, retired integrative breast surgical oncologist, certified yoga therapist, energy healer, integrative health coach, and oncology nutrition counselor, joins us. Dr. Aks shares her extensive knowledge of integrative health. Cynthia discusses how nutritional values in food impact our well-being. She explains the importance of individua…
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From the Depths of Despair to Embracing Life: The Stage IV Colon Cancer Survivor Journey of Dr. Jonathan Raviotta PhD, Public Health
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Welcome to Everything Cancer! In today's episode, we sit down with Dr. Jonathan Raviotta, PhD in Public Health and Associate Professor at the University of Pittsburgh. Jonathan shares his remarkable four-year journey through cancer and personal transformation. His story is a testament to resilience and the power of human connection. Jonathan’s trea…
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Spa Day for Your Mouth (say good-bye to dry mouth!) - Dr. Rajiv Saini, Chief Science Officer of H2Ocean, joins us to discuss the benefits of Red Sea Salt
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🦷 Do you experience dry mouth or that awful metallic taste? Want to know a great way to soothe mouth sores and help them heal quickly? Dr. Rajiv Saini has your answer! Welcome to the "Everything Cancer" podcast. Today, we're delving into the vital topic of mouth care with Dr. Rajiv Saini, Chief Science Officer at H2Ocean. Dr. Saini discusses why go…
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Survivor Guilt is a Thing... and it became former CIA team member Ellen’s drive to advocate for others
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Self-described mom, wife, cyclist, and plant-killer, Ellen Goodwin’s fascinating journey from the CIA to cancer advocacy will inspire. Ellen talks with Jill about how she grapples with survivor's guilt but has found purpose in advocating for breast cancer research through Komen. She shares with the audience how much the community and support of her…
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Cancer is an A$$hole: Interview with Amanda Ferarro - Leukemia Survivor, Patient Advocate, TEDxSpeaker
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Meet Amanda Ferarro: Dive into Amanda's powerful journey as a cancer survivor, healthcare influencer, and bestselling author. Amanda tells it like it is and pulls no punches! Yet she offers real hope, humor, authenticity, and advocacy. TEDx Speaker: Hear about Amanda's impactful TEDx talk, sharing her story and advocating for cancer survivors: Thro…
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"Showing Up: Perspectives on Cancer" Host Tim Sohn talks about why it is so important that survivors know they are not alone
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Tim Sohn, a CML cancer survivor, hosts and produces the weekly live-stream show, “Showing Up: Perspectives on Cancer”. Tim and his survivor guests prove how valuable the shared experience can be. Jill and Tim discuss the challenges of engaging in life with an “invisible illness”. Today, Tim joins the podcast and shows us his gift of making us feel …
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A Clinical Oncology Pharmacist Has Your Back: discover their superpowers in this episode
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A clinical oncology pharmacist has your back! They can help ensure you understand your treatment and how to manage its side effects. They are experts in how your treatment interacts with other medications and supplements you take. In this episode of Everything Cancer, we dive into the pivotal role of a clinical oncology pharmacist with our guest, M…
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Fierce Advocacy for Those Who Live with Lymphedema: A woman’s 13-year battle to get the Lymphedema Treatment Act passed in the US
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Heather worked relentlessly to improve accessibility to and coverage of Lymphedema Treatment vastly! In this compelling episode of Everything Cancer, we sit down with Heather Ferguson, founder and executive director of the Lymphedema Advocacy Group, recently known as Lymphedema Treatment Act.org. Find out how Heather’s 13-year odyssey at the level …
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Part 2, Dr. Alique Topalian, PhD: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver
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Episode Description: In the second part of our interview with Dr. Alique Topalian, PhD in Health Promotion Education, we continue to explore her remarkable journey as both a pediatric and young adult cancer survivor. Dr. Topalian delves deeper into her advocacy work, fighting for legislative changes to support all cancer survivors. Dr. Topalian is …
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Part 1 - Dr. Alique Topalian, PhD, MPH: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver
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Episode Description: In this first part of our interview with Dr. Alique Topalian, we explore her incredible journey as both a pediatric and young adult cancer survivor. Dr. Topalian shares her experiences with self-advocacy, the challenges of finding a bone marrow match, and her involvement in bio-marker insurance coverage legislation. She discuss…
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“Chemo Brain” is for Real, and There is Real Help - A Discussion on Chemotherapy-Induced Cognitive Impairment
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Today, Jill is joined by Doreen Bridgman and Marilyn Abrahamson, the brilliant and compassionate minds behind Brain Thrive—Brain Health Coaching. These experienced speech-language pathologists dive into the realities of "Chemo Brain," a common yet often misunderstood side effect of chemotherapy. If you find mind fatigue, fogginess, and forgetfulnes…
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Young Adult Hodgkin lymphoma survivor with fresh perspectives on maintaining good mental health during the good, the bad, and the ugly.
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Ford Fischer, also known as the Grammar Slammer, joins us to discuss his transformative journey as a cancer survivor. Marking five years since his diagnosis and three years of remission, Ford offers a fresh perspective on life, maturity, and the importance of asking questions, community, and practicing diligent self-care during and after treatment.…
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Reclaim control and regain quality of life, intimacy, and continence with Pelvic Floor Physical Therapy
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Join us on this episode, where Dr. Rachel McCall, a Doctor of Physical Therapy and pelvic floor physical therapist, discusses how this specialized therapy can alleviate conditions that greatly affect quality of life. Rachael discusses tackling vaginal stenosis, erectile dysfunction, chronic pelvic pain, and both bowel and urinary incontinence, lead…
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Unlocking the Restorative, Healing Power of Sleep on the Cancer Journey
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Jill covers the critical role of sleep in the healing and restoration of mind and body on the cancer journey. What you'll learn: Discover how sleep aids in combating fatigue, alleviating stress and reducing chemotherapy-induced cognitive impairment. Jill shares practical tips to improve your sleep quality including establishing A consistent bedtime…
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Mike Herman: Beating the Odds Against Cancer, Inspiring the Future
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Mike Herman did not just beat the longevity odds against cancer through clinical trials and self-advocacy—he's now on a mission to empower others to do the same. Mike shares his story: from his and his spouse’s unwillingness to accept what they were sure was an inaccurate diagnosis to fierce self-advocacy leading to the accurate but incurable cance…
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Know 'Your Crew': Match Tasks to Talents for Your Wellbeing (chase away reluctance to accept or ask for help)
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Feeling like you're alone is an awful feeling. Jill shares useful ideas on how asking for and accepting help can be so much easier. Your Crew' represents the group of people able to offer support. By matching the talents of individual crew members with specific tasks, everyone benefits. Your crew members feel fulfilled using their skills effectivel…
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"I Got My Life Back!" through Move Beyond Surviving - an outdoor challenge experience for breast cancer survivors
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"I got my life back." Sit back and be inspired by breast cancer survivors who are destined for adventure. Join Breast Cancer Survivor Sara Hill, Breast Surgeon Dr. Kelly McClean, outdoor enthusiast and founder of Move Beyond Surviving, and Tom Tressler, Executive Director, as they share the transformative experiences of breast cancer survivors who …
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Get Your Healthcare Team and Family/Crew Into Your Corner: communicate with them what is important to you
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9:00
Summary Understanding what is important to you in the short term and long term is crucial for effective self-advocacy during the cancer journey. Priorities change as life circumstances change; free yourself to adjust your priorities. Writing down your priorities and goals can help you have more effective discussions with your healthcare providers, …
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I realized I had two choices - I chose to control my response to what was happening: words from an ICU Nurse, Young Adult Head and Neck Cancer Survivor
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Former ICU nurse, certified trauma-informed wellness coach, current RN, and AYA cancer survivor Stephanie (Stef) Gayhart shares her story of diagnosis of Head and Neck Cancer, recovery from major surgery, and survivorship. Stef is candid about how much harder her recovery from surgery and cancer journey are than she thought they would be. Steph cul…
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Give Yourself a Serious Edge with Simple Tracking
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Empower yourself with a strong pillar of self-advocacy on the cancer journey – through simple tracking… There are a lot of moving pieces in the cancer journey. Do yourself a favor and take stress off of your shoulders by jotting down things that impact your journey. Use your phone, a notebook, a binder, or Cancer Journey Guide and Journals: Empower…
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Breast Cancer Survivor Lost, Scared, and Alone - Inspired to Form "Young Women's Breast Cancer Awareness Foundation"
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57:05
"Having cancer is like being thrown out of a plane into Russia and not speaking Russian." Jen Helm, a cancer survivor, was diagnosed with breast cancer at 36. Her kids at the time were 5, 3, and 15 months old. Can you imagine what was going through her head? Her plastic surgeon coined her as "high maintenance" for asking hundreds of questions. Afte…
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A Knowledgeable Supportive Care Team Can Help Unravel the Complex Issues of Survivorship
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An Interview with Michelle Kirschner, CRNP: Survivorship and Supportive Care Leader In this episode, Michelle and Jill discuss: How the Cancer Survivor Provider Network (CSPN) came to be The need to serve survivors well The resources, learning opportunities, and networking provided by CSPN What is the National Coalition of Cancer Survivorship Survi…
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The Challenges of a Young Adult Affected by Cancer, Facing Mortality Head On, and Dating After Cancer
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Salma Harfouche, A colorful and intrepid heart cancer survivor, is a branding expert (as in marketing, not cows), and cow lover (as in friends and hamburgers) also loves puns as much as you do. "If they dig you, they're totally open to having that conversation, and they're probably gonna appreciate it, honestly." Can you relate? Join Everything Can…
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Some People Would Say “It’s Just Sex”, But It Impacts Every Part of Your Life
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59:23
This podcast highlights a woman’s experience in losing her ability to engage in traditional sex after radiation treatment for her cancer. She did something about it to help prevent other survivors from having the same devasting experience. Our guest, Erin is the Executive Director of "After Cancer: Solutions for Sexual Health", which currently conc…
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Interview with a Radiation Physicist … how radiation treatment works and the awesomeness of the “cellar dwellers”
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Abby, a medical physicist with a degree in nuclear engineering, decided to skip the nuclear submarine and join the fight against cancer with her medical physics graduate degree. She explains her behind-the-scenes role in radiation oncology and explains how radiation therapy works. The episode delves into the detailed treatment planning process (tha…
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This thought-provoking and inspiring podcast features Jeff Stewart, a metastatic gastrointestinal adenocarcinoma survivor, discussing his cancer journey, the impact of his diagnosis and facing his mortality, treatment experiences, and insights into living with cancer. Jeff also talks about his book, "Living Inspiration from a Father with Cancer," w…
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In this podcast episode, Beth and Jason share their journey through Jason's diagnosis and treatment of gastric cancer. They review the 2nd opinion process toward the beginning of this episode. Toward the end of this episode, Jason and Beth go into the benefits of confidence in treatment decisions and shared decision-making with their oncologist hav…
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An Introduction to Everything Cancer Podcast. Welcome. Join us for compelling survivor stories. Hear how they met challenges and discovered blessings. Understand that you are not alone. Learn strategies for effective self-advocacy. Become more confident and comfortable with speaking up for your needs and understanding your cancer, survivorship issu…
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Communicating means letting someone else know clearly what you think and feel, and also learning what the other person thinks and feels.Av National Coalition for Cancer Survivorship
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Finding Information explains how to use many of the different resources available to find information that will help you understand your kind of cancer and its treatment.Av National Coalition for Cancer Survivorship
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Making Decisions is designed to help you identify how you make decisions, how your style of decision making can work or be improved, and how you can weigh the pros and cons of deciding about cancer treatment.Av National Coalition for Cancer Survivorship
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Solving Problems describes how to identify and follow the steps needed to solve a difficult situation in your life or daily activity.Av National Coalition for Cancer Survivorship
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Negotiating means talking with people involved in your healthcare so that you can get what you need to have the best quality of life possible.Av National Coalition for Cancer Survivorship
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Program 06 - Standing Up for Your Rights
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Standing Up for Your Rights means learning to actively do something in your own best interest. This is also known as self-advocacy. This program aims to help you feel more in control about your life, build confidence to face challenges that seem too difficult to ocvercome, reach out to others, and feel hopeful rather than hopeless.…
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Program 07 - First Steps for the Newly Diagnosed
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1:12:40
First Steps for the Newly Diagnosed refers to the information that needs to be gathered and the decisions that need to be made in the initial days and weeks after you are diagnosed with cancer. In this program, we offer practical guidelines designed to help you take those first steps toward successfully meeting the challenges that a cancer diagnosi…
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Dying Well-The Final State of Survivorship. Although death is an inevitable part of life, few of us know just what to do or say or how to find the support we need when we are nearing the end of our lives and saying our final goodbyes.Av National Coalition for Cancer Survivorship
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Program 09 - Caring for the Caregiver
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1:14:24
Caring for the Caregiver was developed specifically to provide resources and support for cancer caregivers to help them address the issues they face on an ongoing basis. As a caregiver, it is easy to be overwhelmed by caring for a cancer survivor. An important point to remember is that you, as a caregiver, are also a survivor because you, too, are …
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Program 10 - Living Beyond Cancer Part 1
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Living Beyond Cancer discusses a number of important issues that are specific to life beyond the diagnosis and initial treatment of cancer. Surviving cancer is more complicated than simply being sick or well, having cancer or being cancer free. Instead, it is a continual process that is constantly changing.…
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Program 11 - Living Beyond Cancer Part 2
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46:28
Living Beyond Cancer discusses a number of important issues that are specific to life beyond the diagnosis and initial treatment of cancer. Surviving cancer is more complicated than simply being sick or well, having cancer or being cancer free. Instead, it is a continual process that is constantly changing.…
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Hear of a few more resources that can put end of life in perspective and be a support to survivors and their families.Av National Coalition for Cancer Survivorship
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Learn about "the tasks of mourning" as they are a part of the normal grief process.Av National Coalition for Cancer Survivorship
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10 Survivor Stories - Role of Spirituality
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Hear how a person's spirituality can help them find a meaning in the end of life.Av National Coalition for Cancer Survivorship
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Listen to a list of the most common physical signs that a body may be approaching death.Av National Coalition for Cancer Survivorship
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08 Survivor Stories - Symptom Management
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Learn some of the symptoms one might encounter when nearing the end of their life. Understanding these symptoms is important to ensure comfort and support.Av National Coalition for Cancer Survivorship
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Learn the logistics of Medicaid and hear from Linda, a cancer survivor, about her experience.Av National Coalition for Cancer Survivorship
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