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Episode #9 Patient Centered View of Narcolepsy
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In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy.
SHOW NOTES
- Introduction of Guest: (5:00)
- Matt’s Best Advice (11:00)
- Matt’s Role in the sleep community (12:40)
- Matt’s symptoms onset (15:00)
- Matt’s additional symptoms (19:00)
- Matt’s onset of cataplexy (23:00)
- Cataplexy triggers (24:45)
- Delayed diagnosis: (27:00)
- Nightmares and sleep paralysis onset (31:30)
- One more question about sleep paralysis (34:15)
- Partial cataplexy (37:50)
- Diagnosis and Management: (39:00)
- Pitolisant (43:45)
- Strategic Napping (44:15)
- Bitter Pills (45:15)
- AASM revised Guidelines (47:22)
- Sodium Oxybate and Cataplexy (49:00)
- Finding a sleep physician to manage narcolepsy (55:00)
- Sleep apnea (60:30)
- MSLT (62:15)
- Treat Clinically (65:00)
- 4 pillars of management (66:00)
- Patient request/feedback (68:00)
- Academic vs private practice (71:30)
Links to articles and guidelines referenced in this episode are included
Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.
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